Knowledge, attitude and acceptance regarding bone marrow transplantation in caregivers of beta-thalassemia major patients

被引:0
|
作者
Jayaram, Purva Reddy [1 ]
Devadas, Sahana [2 ]
Jain, Paridhi [1 ]
Devi, C. Gayathri [2 ]
机构
[1] Bangalore Med Coll & Res Inst, Bangalore, Karnataka, India
[2] Vani Vilas Hosp, Dept Pediat, Bangalore, Karnataka, India
关键词
Thalassemia; Bone marrow transplantation; Pediatric anemia; Blood transfusion; STEM-CELL TRANSPLANTATION; QUALITY-OF-LIFE; ADULTS; BLOOD;
D O I
10.1007/s12687-024-00739-2
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
ObjectiveKnowledge, Attitude, and Acceptance regarding Bone marrow transplantation in caregivers of beta-thalassemia major patients.MethodsA cross-sectional study was conducted among the caregivers of pediatric patients with betathalassemia major in blood transfusion centres in Bangalore, India. Their knowledge, attitude, and acceptance regarding bone marrow transplantation were assessed using a validated questionnaire. The study aimed to identify factors that influence caregivers' decision about bone marrow transplantation.ResultsThe knowledge, attitude, and acceptance of the caregivers towards bone marrow transplantation are shown to depend on gender, education and socio-economic status. The results of this study reveal that male caregivers generally exhibited higher levels of knowledge and had a better attitude towards it as compared to their female counterparts. Higher education and socio-economic status were associated with better knowledge, more favourable attitudes and a higher acceptance towards the procedure.
引用
收藏
页码:673 / 679
页数:7
相关论文
共 50 条
  • [21] Successful management of mixed chimerism after bone marrow transplant in beta-thalassemia major
    Kropshofer, Gabriele
    Sopper, Sieghart
    Steurer, Michael
    Schwinger, Wolfgang
    Crazzolara, Roman
    AMERICAN JOURNAL OF HEMATOLOGY, 2016, 91 (09) : E357 - E358
  • [22] Combined Transplantation of Bone Marrow and Umbilical Cord Blood of Same Sibling in Twenty Three Children with Beta-Thalassemia Major
    Wu Xuedong
    Li Chunfu
    Feng, Xiaoqin
    He, Yuelin
    Zhou, Xiaohui
    Liu, Qifa
    BLOOD, 2012, 120 (21)
  • [23] ERYTHROPOIESIS FOLLOWING BONE-MARROW TRANSPLANTATION FROM DONORS HETEROZYGOUS FOR BETA-THALASSEMIA
    GALANELLO, R
    BARELLA, S
    MACCIONI, L
    PAGLIETTI, E
    MELIS, MA
    ROSATELLI, MC
    ARGIOLU, F
    CAO, A
    BRITISH JOURNAL OF HAEMATOLOGY, 1989, 72 (04) : 561 - 566
  • [24] Bone mineral density in beta-thalassemia major and intermedia
    Karimi, Mehran
    Ghiam, Alireza Fotouhi
    Hashemi, Alireza
    Alinejad, Saied
    Soweid, Mahmood
    Kashef, Sara
    INDIAN PEDIATRICS, 2007, 44 (01) : 29 - 32
  • [25] DETERMINANTS OF CAREGIVING BURDEN AMONG CAREGIVERS OF ADULT PATIENTS WITH BETA-THALASSEMIA MAJOR IN CHINA
    Zhang, S.
    Zhang, R.
    Ming, J.
    Xie, J.
    Liu, B.
    Chen, C. Q.
    Jiang, W. H.
    Wang, Z.
    Zhen, X.
    Sun, X. J.
    VALUE IN HEALTH, 2022, 25 (12) : S207 - S208
  • [26] Polyneuropathy and myopathy in beta-thalassemia major patients
    Nemtsas, P.
    Arnaoutoglou, M.
    Perifanis, V.
    Koutsouraki, E.
    Spanos, G.
    Arnaoutoglou, N.
    Chalkia, P.
    Pantelidou, D.
    Orologas, A.
    ANNALS OF HEMATOLOGY, 2018, 97 (05) : 899 - 904
  • [27] Immunological evaluation of patients with beta-thalassemia major
    Consolini, R
    Calleri, A
    Legitimo, A
    Massei, F
    ACTA HAEMATOLOGICA, 2001, 105 (01) : 7 - 12
  • [28] SOME FEATURES OF BONE-MARROW MACROPHAGES IN PATIENTS WITH HOMOZYGOUS BETA-THALASSEMIA
    WICKRAMASINGHE, SN
    HUGHES, M
    BRITISH JOURNAL OF HAEMATOLOGY, 1978, 38 (01) : 23 - &
  • [29] BONE-MARROW TRANSPLANTATION FOR THALASSEMIA MAJOR
    BERDOUKAS, V
    VOWELS, M
    LAMPOTANG, R
    FORD, D
    AUSTRALIAN AND NEW ZEALAND JOURNAL OF MEDICINE, 1988, 18 (03): : 445 - 445
  • [30] BONE-MARROW TRANSPLANTATION FOR THALASSEMIA MAJOR
    VOWELS, M
    BERDOUKAS, V
    LAMPOTANG, R
    FORD, D
    AUSTRALIAN PAEDIATRIC JOURNAL, 1988, 24 (01): : 75 - 75