The Crucial Role of Empowerment in Engaging Adolescents and Young Adults for Independence: Essential Strategies and Skills for a Successful Transition

被引:0
|
作者
Vittorio, Jennifer [1 ]
Kosmach-Park, Beverly [2 ]
King, Lindsay [3 ]
机构
[1] NYU, Transplant Inst, NYU Langone Hlth, New York, NY 10012 USA
[2] UPMC, Childrens Hosp Pittsburgh, Dept Transplant Surg, Pittsburgh, PA USA
[3] Duke Univ Hlth Syst, Div Gastroenterol, Durham, NC USA
关键词
adherence; adolescents; executive functioning; transfer of care; transition of care; transplantation; young adults; HEALTH-CARE TRANSITION; PEDIATRIC LIVER-TRANSPLANTATION; QUALITY-OF-LIFE; ORGAN-TRANSPLANTATION; SELF-MANAGEMENT; ADHERENCE; READINESS; RELIABILITY; RECIPIENTS; OUTCOMES;
D O I
10.1111/petr.14826
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
BackgroundAn increasing number of pediatric solid organ transplant (SOT) recipients are surviving into adolescence and young adulthood. The transition from pediatric to adult-oriented care occurs during a unique and vulnerable period.MethodsPresented here is a structured approach to healthcare transition (HCT) for adolescent and young adult SOT recipients aimed at optimizing independence in order to assist young patients with adherence, self-management, and improved quality of life.ResultsClose attention must be paid to neurocognitive development, mental well-being, and social determinants of health.ConclusionsThese efforts require a multidisciplinary team approach as well as collaboration between pediatric and adult providers in order to achieve these goals and patient longevity. Presented here is a structured approach to healthcare transition for adolescent and young adult SOT recipients aimed at optimizing independence in order to assist young patients with adherence, self-management, and improved quality of life. These efforts require a multidisciplinary team approach as well as collaboration between pediatric and adult providers.image
引用
收藏
页数:12
相关论文
共 29 条
  • [1] Engaging young adolescents in social action through Photovoice - The Youth Empowerment Strategies (YES!) project
    Wilson, Nance
    Dasho, Stefan
    Martin, Anna C.
    Wallerstein, Nina
    Wang, Caroline C.
    Minkler, Meredith
    [J]. JOURNAL OF EARLY ADOLESCENCE, 2007, 27 (02): : 241 - 261
  • [2] Failed transition to independence in young adults with epilepsy: The role of loneliness
    Geerlings, R. P. J.
    Gottmer-Welschen, L. M. C.
    Machielse, J. E. M.
    de Louw, A. J. A.
    Aldenkamp, A. P.
    [J]. SEIZURE-EUROPEAN JOURNAL OF EPILEPSY, 2019, 69 : 207 - 212
  • [3] Transition Strategies for Adolescents & Young Adults Who Use AAC
    Thurston, Susan
    [J]. CANADIAN JOURNAL OF SPEECH-LANGUAGE PATHOLOGY AND AUDIOLOGY, 2014, 38 (03): : 372 - 374
  • [4] Transition Strategies for Adolescents & Young Adults Who Use AAC
    Doty, Antonette
    [J]. PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS, 2011, 31 (04) : 451 - 452
  • [5] SURVEY OF PROFESSIONAL OPINION ON CRITICAL TRANSITION SKILLS FOR ADOLESCENTS AND YOUNG-ADULTS WHO ARE DEAF
    BULLIS, M
    REIMAN, JW
    [J]. REHABILITATION COUNSELING BULLETIN, 1989, 32 (03) : 231 - 242
  • [6] Chronological age when healthcare transition skills are mastered in adolescents/young adults with inflammatory bowel disease
    Stollon, Natalie
    Zhong, Yi
    Ferris, Maria
    Bhansali, Suneet
    Pitts, Brian
    Rak, Eniko
    Kelly, Maureen
    Kim, Sandra
    van Tilburg, Miranda A. L.
    [J]. WORLD JOURNAL OF GASTROENTEROLOGY, 2017, 23 (18) : 3349 - 3355
  • [7] The role and the composition of a liaison team to facilitate the transition of adolescents and young adults: an umbrella review
    Vanden Wyngaert, Karsten
    Nedee, Marie-Lise
    Piessevaux, Odile
    De Martelaer, Tine
    Van Biesen, Wim
    Cocquyt, Veronique
    Van Daele, Sabine
    De Munter, Johan
    [J]. EUROPEAN JOURNAL OF PEDIATRICS, 2023, 182 (04) : 1483 - 1494
  • [8] The role and the composition of a liaison team to facilitate the transition of adolescents and young adults: an umbrella review
    Karsten Vanden Wyngaert
    Marie-Lise Nédée
    Odile Piessevaux
    Tine De Martelaer
    Wim Van Biesen
    Veronique Cocquyt
    Sabine Van Daele
    Johan De Munter
    [J]. European Journal of Pediatrics, 2023, 182 : 1483 - 1494
  • [9] Chronological age when health care transition skills are mastered in adolescents/young adults with inflammatory bowel disease
    Natalie Stollon
    Yi Zhong
    Maria Ferris
    Suneet Bhansali
    Brian Pitts
    Eniko Rak
    Maureen Kelly
    Sandra Kim
    Miranda AL van Tilburg
    [J]. World Journal of Gastroenterology, 2017, 23 (18) : 3349 - 3355
  • [10] Chronological Age When Health Care Transition Skills Are Mastered in Adolescents/Young Adults With Inflammatory Bowel Disease
    van Tilburg, Miranda A.
    Zhong, Yi
    Gilleskie, Donna
    Nazareth, Meaghan L.
    Javalkar, Karina
    Kim, Sandra C.
    Kelly, Maureen
    Lichtman, Steven
    Ferris, Maria
    [J]. GASTROENTEROLOGY, 2016, 150 (04) : S771 - S772