Addressing Ethical Challenges Related to Community and Patient Engagement in Health Research

被引:0
|
作者
Cordeaux, Emily [1 ]
Sheikhan, Natasha Yasmin [1 ]
Boateng, Rhonda [1 ]
机构
[1] Univ Toronto, Dalla Lana Sch Publ Hlth, Inst Hlth Policy Management & Evaluat, Toronto, ON, Canada
关键词
community engagement; patient engagement; lived experience; health research; power; ethics;
D O I
10.7202/1112302ar
中图分类号
R-052 [医学伦理学];
学科分类号
0101 ; 120402 ;
摘要
In this post-workshop summary, we describe three ethical challenges related to engaging people with lived experience as partners in health research. We share learnings and reflective prompts from our workshop delivered as part of the Canadian Bioethics Society Workshop and Community Forum held in May 2023.
引用
收藏
页数:5
相关论文
共 50 条
  • [31] Community engagement in urban health research
    Fleischman, Alan R.
    [J]. JOURNAL OF URBAN HEALTH-BULLETIN OF THE NEW YORK ACADEMY OF MEDICINE, 2007, 84 (04): : 469 - 471
  • [32] Addressing key challenges to interdisciplinary research on water-related issues: Biologists' engagement and funding structure
    Baveye, Philippe C.
    [J]. BIOLOGIA, 2013, 68 (06) : 1087 - 1088
  • [33] Community engagement in global health research
    Adebisi, Yusuff Adebayo
    Lucero-Prisno, Don Eliseo, III
    [J]. CLINICAL EPIDEMIOLOGY AND GLOBAL HEALTH, 2022, 13
  • [34] Patient Health Incentives: Ethical Challenges and Frameworks
    Klein, Eran P.
    [J]. INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, 2014, 21 (06) : 995 - 1004
  • [35] Health related quality of life and the CKD patient: challenges for the nephrology community
    Finkelstein, Fredric O.
    Wuerth, Diane
    Finkelstein, Susan H.
    [J]. KIDNEY INTERNATIONAL, 2009, 76 (09) : 946 - 952
  • [36] Patient Health Incentives: Ethical Challenges and Frameworks
    Eran P. Klein
    [J]. International Journal of Behavioral Medicine, 2014, 21 : 995 - 1004
  • [37] Community engagement programs on radiation and health: addressing public concerns
    Brzozek, Chris
    Karipidis, Ken
    [J]. PUBLIC HEALTH RESEARCH & PRACTICE, 2023, 33 (03):
  • [38] Using Photovoice to Improve Engagement in Community Health Assessments Addressing Behavioral Health
    Li, Stacey
    Gulley, Jennifer
    Booty, Marisa
    Firchow, Bradley
    McGladrey, Margaret L.
    [J]. JOURNAL OF BEHAVIORAL HEALTH SERVICES & RESEARCH, 2024,
  • [39] TRANSFORMATION FROM UNETHICAL STD RESEARCH TO ETHICAL COMMUNITY ENGAGEMENT
    Warren, Rueben
    [J]. SEXUALLY TRANSMITTED DISEASES, 2014, 41 : S120 - S120
  • [40] Addressing Ethical Challenges in US-Based HIV Phylogenetic Research
    Dawson, Liza
    Benbow, Nanette
    Fletcher, Faith E.
    Kassaye, Seble
    Killelea, Amy
    Latham, Stephen R.
    Lee, Lisa M.
    Leitner, Thomas
    Little, Susan J.
    Mehta, Sanjay R.
    Martinez, Omar
    Minalga, Brian
    Poon, Art
    Rennie, Stuart
    Sugarman, Jeremy
    Sweeney, Patricia
    Torian, Lucia, V
    Wertheim, Joel O.
    [J]. JOURNAL OF INFECTIOUS DISEASES, 2020, 222 (12): : 1997 - 2006