Addressing Ethical Challenges Related to Community and Patient Engagement in Health Research

被引:0
|
作者
Cordeaux, Emily [1 ]
Sheikhan, Natasha Yasmin [1 ]
Boateng, Rhonda [1 ]
机构
[1] Univ Toronto, Dalla Lana Sch Publ Hlth, Inst Hlth Policy Management & Evaluat, Toronto, ON, Canada
关键词
community engagement; patient engagement; lived experience; health research; power; ethics;
D O I
10.7202/1112302ar
中图分类号
R-052 [医学伦理学];
学科分类号
0101 ; 120402 ;
摘要
In this post-workshop summary, we describe three ethical challenges related to engaging people with lived experience as partners in health research. We share learnings and reflective prompts from our workshop delivered as part of the Canadian Bioethics Society Workshop and Community Forum held in May 2023.
引用
收藏
页数:5
相关论文
共 50 条
  • [1] The ethical challenges and opportunities of implementing engagement strategies in health research
    Salerno, Jennifer
    Coleman, Karen J.
    Jones, Felica
    Peters, Edward S.
    [J]. ANNALS OF EPIDEMIOLOGY, 2021, 59 : 37 - 43
  • [2] Addressing community health needs through community engagement research advisory boards
    Patten, Christi A.
    Albertie, Monica L.
    Chamie, Chara A.
    Brockman, Tabetha A.
    Gorfine, Mary
    Nicholas, Rosa
    Bock, Martha J.
    Okamoto, Janet M.
    Penheiter, Sumedha G.
    Balls-Berry, Joyce E.
    [J]. JOURNAL OF CLINICAL AND TRANSLATIONAL SCIENCE, 2019, 3 (2-3) : 125 - 128
  • [3] Ethical issues in mental health research: the case for community engagement
    DuBois, James M.
    Bailey-Burch, Brendolyn
    Bustillos, Dan
    Campbell, Jean
    Cottler, Linda
    Fisher, Celia B.
    Hadley, Whitney B.
    Hoop, Jinger G.
    Roberts, Laura
    Salter, Erica K.
    Sieber, Joan E.
    Stevenson, Richard D.
    [J]. CURRENT OPINION IN PSYCHIATRY, 2011, 24 (03) : 208 - 214
  • [4] Social Justice and the Ethical Goals of Community Engagement in Global Health Research
    Bridget Pratt
    [J]. Journal of Bioethical Inquiry, 2019, 16 : 571 - 586
  • [5] Social Justice and the Ethical Goals of Community Engagement in Global Health Research
    Pratt, Bridget
    [J]. JOURNAL OF BIOETHICAL INQUIRY, 2019, 16 (04) : 571 - 586
  • [6] Ethical Challenges Related to Patient Involvement in Health Technology Assessment
    Vanstone, Meredith
    Abelson, Julia
    Bidonde, Julia
    Bond, Kenneth
    Burgess, Raquel
    Canfield, Carolyn
    Schwartz, Lisa
    Tripp, Laura
    [J]. INTERNATIONAL JOURNAL OF TECHNOLOGY ASSESSMENT IN HEALTH CARE, 2019, 35 (04) : 253 - 256
  • [7] Ethical challenges in global health-related stigma research
    Millum, Joseph
    Campbell, Megan
    Luna, Florencia
    Malekzadeh, Arianne
    Karim, Quarraisha Abdool
    [J]. BMC MEDICINE, 2019, 17 (1)
  • [8] Ethical challenges in global health-related stigma research
    Joseph Millum
    Megan Campbell
    Florencia Luna
    Arianne Malekzadeh
    Quarraisha Abdool Karim
    [J]. BMC Medicine, 17
  • [9] Addressing Methodological and Ethical Challenges of Qualitative Health Research on Persons With Schizophrenia and Bipolar Disorder
    Graor, Christine Heifner
    Knapik, Gregory P.
    [J]. ARCHIVES OF PSYCHIATRIC NURSING, 2013, 27 (02) : 65 - 71
  • [10] ETHICAL COMMUNITY ENGAGEMENT FOR PSYCHIATRIC GENOMIC RESEARCH
    Peay, Holly
    [J]. EUROPEAN NEUROPSYCHOPHARMACOLOGY, 2019, 29 : 1051 - 1051