Advances in Care and Outcomes for Children with Cystic Fibrosis

Over the past decade, significant advances in early detection and treatment have changed the course of pediatric CF. Prenatal testing and NBS are allowing for earlier diagnosis and action, including nutritional care, microbial surveillance, mucolytics, early eradications of infections, and initiation of highly effective CFTR modulator therapy. Children with CF born today in the United States can, on average, expect to lead full adult lives. Advancing equitable access to these early interventions is urgently needed to expand these benefits to all children with CF.