The development of a disease-specific patient-reported outcome measure (CARD-SARC) to assess the impact of cardiac sarcoidosis on health-related quality of life

被引:0
|
作者
Quijano-Campos, J. C. [1 ]
Sekhri, N. [2 ]
Thillai, M. [3 ]
Blower, E. [4 ]
Clarke, H. [4 ]
Murphy, E. [4 ]
Othen-Price, L. [4 ]
Whight, J. [4 ]
Sanders, J. [2 ]
机构
[1] Queen Mary Univ London, London, England
[2] St Bartholomews & Queen Mary Univ, London, England
[3] Royal Papworth Hosp NHS Fdn Trust, Cambridge, England
[4] CARD SARC Patient & Publ Involvement Grp, London, England
关键词
D O I
10.1093/eurjcn/zvae098.080
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
引用
收藏
页码:I102 / I103
页数:2
相关论文
共 50 条
  • [41] A review of health-related quality of life patient-reported outcome measures in cardiovascular nursing
    Thompson, David R.
    Ski, Chantal F.
    Garside, Joanne
    Astin, Felicity
    EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING, 2016, 15 (02) : 114 - 125
  • [42] Health-related quality of life and patient-reported outcome measurement in Head and Neck Oncology
    Kanatas, Anastasios
    Rogers, Simon N.
    FRONTIERS OF ORAL AND MAXILLOFACIAL MEDICINE, 2023, 5
  • [43] Quality of life in coeliac disease: the qualitative development of a new patient-reported outcome measure
    Crocker, Helen
    Peters, Michele
    Jenkinson, Crispin
    QUALITY OF LIFE RESEARCH, 2013, 22
  • [44] Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis
    Modi, AC
    Quittner, AL
    JOURNAL OF PEDIATRIC PSYCHOLOGY, 2003, 28 (08) : 535 - 545
  • [45] Patient-Reported Outcome Measures for Health-Related Quality of Life in Patients With Acne Vulgaris A Systematic Review of Measure Development and Measurement Properties
    Hopkins, Zachary H.
    Thiboutot, Diane
    Homsi, Haya A.
    Perez-Chada, Lourdes Maria
    Barbieri, John S.
    JAMA DERMATOLOGY, 2022, 158 (08) : 900 - 911
  • [46] The Impact of Fingernail Psoriasis on Patients' Health-Related and Disease-Specific Quality of Life
    van der Velden, Haike M. J.
    Klaassen, Karlijn M. G.
    van de Kerkhof, Peter C. M.
    Pasch, Marcel C.
    DERMATOLOGY, 2014, 229 (02) : 76 - 82
  • [47] Parent IMPACT-III: Development and Validation of an Inflammatory Bowel Disease-specific Health-related Quality-of-life Measure
    Cushman, Grace K.
    Stolz, Mary Gray
    Shih, Sharon
    Blount, Ronald
    Otley, Anthony
    Talmadge, Clair
    Grant, Amy
    Reed, Bonney
    JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION, 2020, 70 (02): : 205 - 210
  • [48] HEALTH-RELATED QUALITY OF LIFE PATIENT-REPORTED OUTCOMES IN SCHIZOPHRENIA
    Millier, A.
    Clay, E.
    Chauhan, D.
    Toumi, M.
    VALUE IN HEALTH, 2012, 15 (07) : A342 - A342
  • [49] DEVELOPMENT OF AN INNOVATIVE PATIENT-REPORTED OUTCOME MEASURE TO ASSESS PATIENT-SPECIFIC QUALITY OF LIFE BASED ON A 360-DEGREE EVALUATION
    Muilwijk, D.
    Gulmans, V
    van der Ent, K.
    PEDIATRIC PULMONOLOGY, 2019, 54 : S362 - S363
  • [50] Treatment of Polycystic Liver Disease Impact on Patient-reported Symptom Severity and Health-related Quality of Life
    Duijzer, Renee
    Barten, Thijs R. M.
    Staring, Christian B.
    Drenth, Joost P. H.
    Gevers, Tom J. G.
    JOURNAL OF CLINICAL GASTROENTEROLOGY, 2022, 56 (09) : 731 - 739