Physician and Patient Agreement in the Perception of Hereditary Angioedema (HAE) Attacks and Their Management: Data From a Real-World Survey

被引:0
|
作者
Busse, Paula [1 ]
Hinds, David [2 ]
Earl, Lucy [3 ]
Lilienstein, Joshua [2 ]
Connolly, Hannah [3 ]
Wynne-Cattanach, Kieran [3 ]
Camp, Charlotte [2 ]
Birija, Lauretta [3 ]
Machnig, Thomas [2 ]
机构
[1] Mt Sinai Sch Med, New York, NY USA
[2] BioMarin Pharmaceut, San Rafael, CA USA
[3] Adelphi Real World, Bollington, England
关键词
D O I
暂无
中图分类号
R392 [医学免疫学];
学科分类号
100102 ;
摘要
253
引用
收藏
页码:AB84 / AB84
页数:1
相关论文
共 50 条
  • [41] Physician- and patient-reported perspectives on myasthenia gravis in Europe: a real-world survey
    Milada Mahic
    Ali Bozorg
    Jonathan DeCourcy
    Keisha Golden
    Gregor Gibson
    Christian Taylor
    Anna Scowcroft
    Orphanet Journal of Rare Diseases, 18
  • [42] Physician- and patient-reported perspectives on myasthenia gravis in Europe: a real-world survey
    Mahic, Milada
    Bozorg, Ali
    DeCourcy, Jonathan
    Golden, Keisha
    Gibson, Gregor
    Taylor, Christian
    Scowcroft, Anna
    ORPHANET JOURNAL OF RARE DISEASES, 2023, 18 (01)
  • [43] Berotralstat for the prophylaxis of hereditary angioedema-Real-world evidence data from the United Kingdom
    Ahuja, Manisha
    Dorr, Anthony
    Bode, Eniola
    Boulton, Anne P. R.
    Buckland, Matthew
    Chee, Samuel
    Dalley, Claire
    Denman, Sarah
    Ekbote, Anjali
    Elkhalifa, Shuayb
    El-Shanawany, Tariq
    Eren, Efrem
    Herwadkar, Archana
    Garcez, Tomaz
    Ghanta, Harichandana
    Grammatikos, Alexandros
    Grigoriadou, Sofia
    Jain, Rashmi
    Lorenzo, Lorena
    Manson, Ania
    Moon, Emily
    Murng, Sai
    Murphy, Aveen
    Mutlu, Leman
    Peters, Nicholas
    Sooriyakumar, Kavitha
    Stroud, Catherine
    Townsend, Katie
    Yellon, Robert L.
    Yong, Patrick
    Kiani-Alikhan, Sorena
    ALLERGY, 2023, 78 (05) : 1380 - 1383
  • [44] Treatment of hereditary angioedema type I or II attacks: use of icatibant in a phase III controlled setting compared with real-world outcomes
    Maurer, M.
    Longhurst, H.
    Li, H. H.
    Fabien, V
    Lumry, W.
    ALLERGY, 2013, 68 : 432 - 433
  • [45] Real-world Treatment Outcomes of Lanadelumab in the Prevention of Hereditary Angioedema Attacks: an Interim Analysis of a Polish, Prospective, Multicenter, Observational Study (CHOPIN)
    Kucharczyk, Aleksandra
    Matuszewski, Tomasz
    Kurowski, Marcin
    Juchacz, Aldona
    Tomasial-Lozowska, Maria
    Trebas-Pietras, Ewa
    Pawlowicz, Robert
    Sokolowska, Malgorzata
    Pawlukiewicz, Magorzata
    Zakrzewska, Magdalena
    Kuziemski, Krzysztof
    Tykwinska, Marta
    Lukaszyk, Mateusz
    Drygala, Syzmon
    Kasprzak, Jakub
    Porebski, Grzegorz
    JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY, 2024, 153 (02) : AB9 - AB9
  • [46] Lessons learned from the real-world diagnosis and management of hereditary hypophosphatemic rickets
    Chaturvedi, Deepti
    Mehasi, Taif EmadEldin
    Benbrahim, Assia
    ElDeeb, Lubna
    Deeb, Asma
    BONE REPORTS, 2024, 21
  • [47] A survey on DDoS Attacks: Router-Based Threats and Defense Mechanism in Real-World Data Centers
    Talpur, Samar Raza
    Kechadi, Tahar
    PROCEEDINGS OF 2016 FUTURE TECHNOLOGIES CONFERENCE (FTC), 2016, : 978 - 984
  • [48] QUALITY OF LIFE AND PRODUCTIVITY LOSS IN PATIENTS WITH HEREDITARY ANGIOEDEMA (HAE) IN SWEDEN; RESULTS FROM A RETROSPECTIVE PATIENT REGISTRY SURVEY IMPLEMENTED BY SWEHA-REG (A POPULATION BASED CENSUS OF HAE IN SWEDEN)
    Nordenfelt, P.
    Bjorkander, J.
    Mallbris, L.
    Lindfors, A.
    Friberg, S.
    Lofdal, K.
    Nordvall, L.
    Werner, S.
    Wahlgren, C. F.
    VALUE IN HEALTH, 2012, 15 (07) : A557 - A557
  • [49] Misalignment in Patient and Physician Perspectives on Disease Burden in Chronic Spontaneous Urticaria (CSU): A Real-World Survey in the US
    Mehlis, Stephanie
    Patil, Dhaval
    Wells, Michael
    Kuruvilla, Merin
    Hetherington, James
    Wrest, Eleanor
    Keal, Aaron
    Mosnaim, Giselle
    JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 2023, 89 (03) : AB65 - AB65
  • [50] Current management of hereditary angioedema with normal C1-inhibitor (nC1-HAE) in the united states: results from a nationwide survey of HAE-treating physicians.
    Riedl, M. A.
    Danese, M. D.
    Danese, S.
    Ulloa, J.
    Maetzel, A.
    ALLERGY, 2021, 76 : 418 - 419