Parents' tacit knowledge of their child with profound intellectual and multiple disabilities: A qualitative study

被引：3

作者：

Kruithof, Kasper ^{[1
]}

Hoogesteyns, Maartje ^{[1
]}

Zaal-Schuller, Ilse ^{[2
,3
]}

Huisman, Sylvia ^{[2
,3
]}

Willems, Dick ^{[1
]}

Nieuwenhuijse, Appolonia ^{[1
]}

机构：

[1] Univ Amsterdam, Dept Ethics Law & Humanities, Amsterdam UMC, Amsterdam, Netherlands

[2] Amsterdam UMC, Dept Paediat, Amsterdam, Netherlands

[3] Prinsenstichting, Inst Outpatient Clin People Intellectual Disabil, Purmerend, Netherlands

来源：

JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY | 2024年

关键词：

profound intellectual and multiple disabilities; tacit knowledge; experiential knowledge; parents; caregivers; care; LIFE DECISION-MAKING; DEVELOPMENTAL-DISABILITIES; PEOPLE; ADULTS; END;

D O I：

10.3109/13668250.2024.2336084

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

BackgroundParents' tacit knowledge plays an important role in the care of persons with profound intellectual and multiple disabilities (PIMD). As little is known about its nature and use, we aimed to explore this parental tacit knowledge.MethodWe conducted semi-structured interviews with parents (n = 11) about their tacit knowledge of their child, based upon video recordings they made of their child's behaviour, and analysed the data thematically.ResultsParents described their tacit knowledge as the capacity to read their child's subtle signs, or to sense and "just know" their child's situation. They had developed this knowledge because of their shared history of proximity and interaction and emphasised that it was crucial in ensuring their children's needs are met.ConclusionsWe describe how parents' tacit knowledge contributes to "good care" for persons with PIMD, interpret the implications for (medical) care practice, and discuss ways to deal with its limitations.

引用

页数：10

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