The 'Other' in End-of-life Care: Providers' Understandings of Patients with Migrant Backgrounds

被引:21
|
作者
Torres, Sandra [1 ]
Agard, Pernilla [1 ]
Milberg, Anna [2 ,3 ]
机构
[1] Uppsala Univ, Dept Sociol, Box 624, S-75126 Uppsala, Sweden
[2] Linkoping Univ, Dept Adv Home Care, Linkoping, Sweden
[3] Linkoping Univ, Dept Social & Welf Studies, Linkoping, Sweden
基金
英国医学研究理事会;
关键词
Migration; end-of-life care; culture-competent care; patient-centredness; religious diversity; cultural diversity; otherness;
D O I
10.1080/07256868.2016.1141756
中图分类号
C91 [社会学];
学科分类号
030301 ; 1204 ;
摘要
Research on how end-of-life care providers make sense of cultural, ethnic and religious diversity is relatively scarce. This article explores end-of-life care providers' understandings of patients with migrant backgrounds through a study based on focus group interviews. The analysis brings to the fore three themes: the expectation that the existence of difference and uncertainty is a given when caring for patients with migrant backgrounds; the expectation that the extension of responsibility that difference entails creates a variety of dilemmas; and the expectation that difference will bring about misunderstandings and that patients' needs can go unmet as a result of this. On the basis of these themes we suggest that the end-of-life care providers interviewed regard patients with migrant backgrounds as Others' and themselves as providers that cannot deliver so called culture-competent care. The findings are problematised using the lens that the debate on patient-centredness offers. The article suggests that if the uniqueness of all patients is to be seriously taken into account then Othering' is perhaps what patient-centredness actually entails.
引用
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页码:103 / 117
页数:15
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