The New Zealand informal caregivers and their unmet needs

Aim To identify the characteristics and demographics of the New Zealand caregiver and their unmet support needs. Method During December 2007-August 2008, 300 caregivers were recruited to participate throughout New Zealand. Mixed methods data were collected by telephone, using two well validated scales: Centre for Epidemiology Studies Depression and Caregivers Reaction Assessment. Caregivers were also asked open-ended questions regarding their support and additional help needed. Analysis was by descriptive statistics and General Inductive approach Results Caregivers aged 30-39 had the highest depression, while a larger group shared the highest stress (ages 30-59). Caregivers commonly discussed adverse effects of caregiving on lifestyle, health and financial situations. Lack of information and assistance were concerns, and respite was inadequate. Overall, less than 1% of caregivers of people under the age of 65 and 4% of caregivers of older people were happy with the support received. Caregivers wanted more financial assistance, information, reliable support workers, flexible respite, and recognition for their caregiving role. Conclusion If the government wishes to have more people with disabilities or chronic illness living at home, greater resources are needed to adequately support caregivers. At present this important sector of the population is undervalued and under provided for.