Caregivers of children with cancer: aspects of life affectcet by the caregiver role

被引:23
|
作者
Beck, Ana Raquel Medeiros [1 ]
Baena de Moraes Lopes, Maria Helena [2 ]
机构
[1] Univ Estadual Campinas, Fac Ciencias Med, Programa Posgrad Saude Crianca & Adolescente, Campinas, SP, Brazil
[2] Univ Estadual Campinas, FCM, Dept Enfermagem, Area Maternoinfantil, Campinas, SP, Brazil
关键词
Family; Child Care; Neoplasms;
D O I
10.1590/S0034-71672007000600010
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
This study aimed at demonstrating that the caregiving role affected the lives of caregivers of children with cancer, the child's degree of dependence regarding the performance of daily life activities (DLA), the degree of help offered by others and the degree to which some aspects of the caregiver's life were affected by caregiving activities. Interviews were held with fifty caregivers of children between the ages of three and ten in a children's hospital, a referral center for cancer and hematological disorders in Campinas, Sao Paulo. These caregiving activities seriously affect the lives of the caregivers and, therefore, an assessment of these aspects may help the nurse detect the problems and plan the healthcare needed by the caregivers of children with cancer.
引用
收藏
页码:670 / 675
页数:6
相关论文
共 50 条
  • [1] Caregiver role strain in caregivers of children with cancer
    Medeiros Beck, Ana Raquel
    Baena de Moraes Lopes, Maria Helena
    [J]. REVISTA BRASILEIRA DE ENFERMAGEM, 2007, 60 (05) : 513 - 518
  • [2] The Role of Resilience within Caregiver Stress and Strain in Caregivers of Autistic Children
    Cansler, Elizabeth
    Foster, Jasmeka
    Zlomke, Kimberly
    [J]. JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS, 2024, 45 (01): : E104 - E104
  • [3] Understanding Caregiver Quality of Life in Caregivers of Hospitalized Older Adults With Cancer
    Hsu, Tina
    Nathwani, Nitya
    Loscalzo, Matthew
    Chung, Vincent
    Chao, Joseph
    Karanes, Chatchada
    Koczywas, Marianna
    Forman, Stephen
    Lim, Dean
    Siddiqi, Tanya
    Stein, Anthony
    Twardowski, Przemyslaw
    Nademanee, Auayporn
    Pal, Sumanta
    Siccion, Eduardo
    Hein, Marjorie
    Akiba, Chie
    Goldstein, Leanne
    Smith, David
    Ma, Huiyan
    Feng, Tao
    Hurria, Arti
    [J]. JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2019, 67 (05) : 978 - 986
  • [4] Evaluation of caregivers' quality of life in patients with cancer with the use of the Caregiver Quality of Life-Cancer questionnaire
    Gawlik, Marta
    Kurpas, Donata
    [J]. MEDYCYNA PALIATYWNA-PALLIATIVE MEDICINE, 2015, 7 (01): : 67 - 77
  • [5] SPIRITUAL GROWTH ASPECTS AMONG CAREGIVERS OF CHILDREN WITH CANCER
    Saari, Che Zarrina
    Wahed, Norwahizatul
    Muhsin, Sharifah Basirah Syed
    Abidin, Mohd Syukri Zainal
    Rahman, S. M. H. S. A.
    Musa, S.
    Ab Rahman, S. Z.
    Sabki, Z. A.
    Chik, Hasimah
    [J]. AFKAR-JURNAL AKIDAH & PEMIKIRAN ISLAM-JOURNAL OF AQIDAH & ISLAMIC THOUGHT, 2022, 24 (01): : 311 - 342
  • [6] Quality of life, caregiver burden, and resilience among the family caregivers of cancer survivors
    Uzar-Ozcetin, Yeter Sinem
    Dursun, Sumeyye Ilayda
    [J]. EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2020, 48
  • [7] The health of caregivers for children with disabilities: caregiver perspectives
    Murphy, N. A.
    Christian, B.
    Caplin, D. A.
    Young, P. C.
    [J]. CHILD CARE HEALTH AND DEVELOPMENT, 2007, 33 (02) : 180 - 187
  • [8] Reliability and validity of the caregiver quality of life index-cancer (CQOLC) scale in Turkish cancer caregivers
    Bektas, Hicran A.
    Ozer, Zeynep C.
    [J]. JOURNAL OF CLINICAL NURSING, 2009, 18 (21) : 3003 - 3012
  • [9] Caregiver Burden in Distance Caregivers of Patients with Cancer
    Park, Sumin
    Mazanec, Susan R.
    Burant, Christopher J.
    Bajor, David
    Douglas, Sara L.
    [J]. CURRENT ONCOLOGY, 2022, 29 (11) : 8967 - 8974
  • [10] The mediating effect of caregiver burden on the caregivers' quality of life
    Jeong, Yeon-Gyu
    Jeong, Yeon-Jae
    Kim, Won-Cheol
    Kim, Jeong-Soo
    [J]. JOURNAL OF PHYSICAL THERAPY SCIENCE, 2015, 27 (05) : 1543 - 1547