Developing a culturally targeted video to enhance the use of genetic counseling in Latina women at increased risk for hereditary breast and ovarian cancer

被引:0
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作者
Alejandra Hurtado-de-Mendoza
Kristi D. Graves
Sara Gómez-Trillos
Minna Song
Lyndsay Anderson
Claudia Campos
Pilar Carrera
Nancy Ostrove
Beth N. Peshkin
Marc D. Schwartz
Nan Ficca
Ana-Paula Cupertino
Nathaly Gonzalez
Andrea Otero
Elmer Huerta
Vanessa B. Sheppard
机构
[1] Georgetown Lombardi Comprehensive Cancer Center,Department of Oncology
[2] Georgetown University,Department of Nursing
[3] Jess and Mildred Fisher Center for Hereditary Cancer and Clinical Cancer Genomics,Department of Psychology
[4] California State University,Cancer Prevention and Control Program, John Theurer Cancer Center
[5] Nueva Vida,Cancer Preventorium, Washington Cancer Institute
[6] DC Office—Alexandria,Department of Health Behavior Policy
[7] Universidad Autonoma de Madrid,undefined
[8] EXPRE,undefined
[9] LLC,undefined
[10] National Conservatory of Dramatic Arts,undefined
[11] Hackensack University Medical Center,undefined
[12] Capital Breast Cancer Center,undefined
[13] Instituto de Medicina Oncológica y Molecular de Asturias (IMOMA),undefined
[14] MedStar Washington Hospital Center,undefined
[15] Virginia Commonwealth University,undefined
来源
关键词
Hereditary breast and ovarian cancer; Genetic counseling; Latinas; Health disparities; Intervention, translational genomics, health communication;
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摘要
Disparities for genetic cancer risk assessment (GCRA) for hereditary breast and ovarian cancer (HBOC) persist between Latina and non-Hispanic Whites. There are few tested culturally targeted interventions. We developed a culturally targeted video to enhance GCRA uptake in at-risk Latinas. Interviews with healthcare providers (n = 20) and at-risk Latinas (n = 20) were conducted as formative research to inform the development of the video. Findings from the formative research, health behavior conceptual models, and evidence-based risk communication strategies informed the messages for the script. Then, we conducted a focus group with at-risk Latinas (n = 7) to obtain feedback for final refinement of the script. The final video was piloted for acceptability and potential dissemination in a sample of Latino community health workers (CHWs) (n = 31). Providers and at-risk Latinas suggested using simple language and visual aids to facilitate comprehension. Participants in the focus group identified areas for further clarification (e.g., cost). The result was an 18-min video that illustrates “Rosa’s” story. Rosa learns about HBOC risk factors and overcomes barriers to attend genetic counseling. CHWs reported high overall satisfaction with the video (M = 9.61, SD = .88, range 1–10). A culturally targeted video has the potential to reach underserved populations with low literacy and English proficiency.
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页码:85 / 99
页数:14
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