User appraisal of a booklet for advance care planning in multiple sclerosis: a multicenter, qualitative Italian study

被引：0
|
作者：
Andrea Giordano
Ludovica De Panfilis
Simone Veronese
Michela Bruzzone
Marta Cascioli
Mariangela Farinotti
Ambra Mara Giovannetti
Maria Grazia Grasso
Paola Kruger
Alessandra Lugaresi
Leigh Manson
Marta Perin
Eugenio Pucci
Claudio Solaro
Luca Ghirotto
Alessandra Solari
机构：
[1] Fondazione IRCCS Istituto Neurologico Carlo Besta,Unit of Neuroepidemiology
[2] Azienda USL-IRCCS di Reggio Emilia,Bioethics Unit
[3] Fondazione FARO ETS, Scientific Directorate
[4] Fondazione Italiana Sclerosi Multipla,Multiple Sclerosis Unit
[5] Hospice ‘La Torre Sul Colle,Dipartimento di Scienze Biomediche e Neuromotorie
[6] Azienda USL Umbria 2,Doctoral Program in Clinical and Experimental Medicine
[7] IRCCS Santa Lucia Foundation,UOC Neurologia AV4
[8] The European Patients’ Academy (EUPATI),Department of Rehabilitation
[9] UOSI Riabilitazione Sclerosi Multipla,Qualitative Research Unit
[10] IRCCS Istituto delle Scienze Neurologiche di Bologna,undefined
[11] Università di Bologna,undefined
[12] Health Quality & Safety Commission New Zealand,undefined
[13] University of Modena and Reggio Emilia,undefined
[14] ASUR Marche,undefined
[15] CRRF “Mons. L. Novarese”,undefined
[16] Azienda USL-IRCCS di Reggio Emilia,undefined
来源：
Neurological Sciences | 2024年 / 45卷 / 3期
关键词：
Multiple sclerosis; Advance care planning; Goals of care; Palliative care; Qualitative research;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
页码：1145 / 1154
页数：9
相关论文
共 50 条
  • [1] User appraisal of a booklet for advance care planning in multiple sclerosis: a multicenter, qualitative Italian study
    Giordano, Andrea
    De Panfilis, Ludovica
    Veronese, Simone
    Bruzzone, Michela
    Cascioli, Marta
    Farinotti, Mariangela
    Giovannetti, Ambra Mara
    Grasso, Maria Grazia
    Kruger, Paola
    Lugaresi, Alessandra
    Manson, Leigh
    Perin, Marta
    Pucci, Eugenio
    Solaro, Claudio
    Ghirotto, Luca
    Solari, Alessandra
    [J]. NEUROLOGICAL SCIENCES, 2024, 45 (03) : 1145 - 1154
  • [2] Development of an advance care planning booklet in Taiwan
    Wang, Shu-Chen
    Chang, Chih-Jung
    Fan, Sheng-Yu
    Wang, Ying-Wei
    Chang, Shu-Chuan
    Sung, Huei-Chuan
    [J]. TZU CHI MEDICAL JOURNAL, 2015, 27 (04): : 170 - 174
  • [3] Advance Care Planning in Multiple Sclerosis (ConCure-SM): an ongoing multicenter feasibility trial
    Giordano, Andrea
    De Panfilis, Ludovica
    Bruzzone, Michela
    Cascioli, Marta
    Gajofatto, Alberto
    Grasso, Maria Grazia
    Kruger, Paola
    Lugaresi, Alessandra
    Manson, Leigh
    Mattarozzi, Katia
    Montepietra, Sara
    Patti, Francesco
    Pucci, Eugenio
    Rimondini, Michela
    Solaro, Claudio
    Veronese, Simone
    Solari, Alessandra
    [J]. MULTIPLE SCLEROSIS JOURNAL, 2023, 29 : 38 - 39
  • [4] Prevalence of Dysphagia in Multiple Sclerosis: An Italian Multicenter Study
    Solaro, Claudio
    Rezzani, Cristina
    Bergamaschi, Roberto
    [J]. NEUROLOGY, 2009, 72 (11) : A375 - A375
  • [5] PREVALENCE OF PAIN IN MULTIPLE SCLEROSIS: A MULTICENTER ITALIAN STUDY
    Solaro, C.
    Cella, M.
    Pedemonte, E.
    Trabucco, E.
    Martinelli, V
    Radaelli, M.
    Centonze, D.
    Rossi, S.
    Grasso, M. G.
    Clemenzi, A.
    Bonavita, S.
    D'Ambrosio, A.
    Patti, F.
    D'Amico, E.
    Cruccu, G.
    Truini, A.
    [J]. JOURNAL OF THE PERIPHERAL NERVOUS SYSTEM, 2012, 17 : S51 - S52
  • [6] Prevalence of pain in Multiple Sclerosis: A multicenter Italian study
    Solaro, C.
    Cella, M.
    Pedemonte, E.
    Trabucco, E.
    Martinelli, V.
    Radaelli, M.
    Centonze, D.
    Rossi, S.
    Grasso, M. G.
    Clemenzi, A.
    Bonavita, S.
    Ambrosio, A. D.
    Patti, F.
    Amico, E. D.
    Cruccu, G.
    Truini, A.
    [J]. MULTIPLE SCLEROSIS JOURNAL, 2012, 18 (05) : S18 - S18
  • [7] A realist review of advance care planning for people with multiple sclerosis and their families
    Cottrell, Laura
    Economos, Guillaume
    Evans, Catherine
    Silber, Eli
    Burman, Rachel
    Nicholas, Richard
    Farsides, Bobbie
    Ashford, Stephen
    Koffman, Jonathan Simon
    [J]. PLOS ONE, 2020, 15 (10):
  • [8] Advance Care Planning: A Qualitative Study of Dialysis Patients and Families
    Goff, Sarah L.
    Eneanya, Nwamaka D.
    Feinberg, Rebecca
    Germain, Michael J.
    Marr, Lisa
    Berzoff, Joan
    Cohen, Lewis M.
    Unruh, Mark
    [J]. CLINICAL JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY, 2015, 10 (03): : 390 - 400
  • [9] Is hospitalisation for COPD an opportunity for advance care planning? A qualitative study
    Seamark, David
    Blake, Susan
    Seamark, Clare
    Hyland, Michael E.
    Greaves, Colin
    Pinnuck, Margaret
    Ward, David
    Hawkins, Adam
    Halpin, David
    [J]. PRIMARY CARE RESPIRATORY JOURNAL, 2012, 21 (03): : 261 - 266
  • [10] Experiences with advance care planning in amyotrophic lateral sclerosis: Qualitative longitudinal study with people with amyotrophic lateral sclerosis and their family carers
    Vandenbogaerde, Isabel
    Van den Block, Lieve
    Deliens, Luc
    Carduff, Emma
    van der Heide, Agnes
    De Bleecker, Jan
    De Vleminck, Aline
    [J]. PALLIATIVE MEDICINE, 2024, 38 (05) : 572 - 581
12345