Conducting a large, multi-site survey about patients’ views on broad consent: challenges and solutions

被引：0
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作者：
Maureen E. Smith
Saskia C. Sanderson
Kyle B. Brothers
Melanie F. Myers
Jennifer McCormick
Sharon Aufox
Martha J. Shrubsole
Nanibaá A. Garrison
Nathaniel D. Mercaldo
Jonathan S. Schildcrout
Ellen Wright Clayton
Armand H. Matheny Antommaria
Melissa Basford
Murray Brilliant
John J. Connolly
Stephanie M. Fullerton
Carol R. Horowitz
Gail P. Jarvik
Dave Kaufman
Terri Kitchner
Rongling Li
Evette J. Ludman
Catherine McCarty
Valerie McManus
Sarah Stallings
Janet L. Williams
Ingrid A. Holm
机构：
[1] Feinberg School of Medicine,Center for Genetic Medicine
[2] Northwestern University,undefined
[3] Icahn School of Medicine at Mount Sinai,undefined
[4] University College London,undefined
[5] University of Louisville School of Medicine,undefined
[6] Cincinnati Children’s Hospital Medical Center,undefined
[7] Penn State College of Medicine,undefined
[8] Vanderbilt University Medical Center and Vanderbilt University,undefined
[9] Seattle Children’s Research Institute,undefined
[10] Marshfield Clinic Research Foundation,undefined
[11] The Children’s Hospital of Philadelphia,undefined
[12] University of Washington,undefined
[13] National Human Genome Research Institute,undefined
[14] National Institutes of Health,undefined
[15] Group Health Research Institute,undefined
[16] Essentia Institute of Rural Health,undefined
[17] Geisinger Health System,undefined
[18] Boston Children’s Hospital,undefined
[19] Harvard Medical School,undefined
来源：
BMC Medical Research Methodology | / 16卷
关键词：
Survey; Consent; Multi-site; Genomics; Institutional Review Board; Cognitive interviews; Pilot;
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