Healthcare access, satisfaction, and health-related quality of life among children and adults with rare diseases

被引：0
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作者：
Kathleen Bogart
Amanda Hemmesch
Erica Barnes
Thomas Blissenbach
Arthur Beisang
Patti Engel
机构：
[1] Oregon State University,School of Psychological Science
[2] St. Cloud State University,Department of Psychology
[3] Chloe Barnes Advisory Council on Rare Diseases,Medical School
[4] University of Minnesota,undefined
[5] Gillette Children’s Specialty Healthcare,undefined
[6] Engage Health Inc.,undefined
[7] University of Minnesota,undefined
[8] 4ES Corporation,undefined
[9] Minnesota House of Representatives,undefined
[10] Minnesota State Senate,undefined
[11] Mayo Clinic,undefined
[12] Minnesota State Senate,undefined
[13] Fairview Southdale Hospital and Fairview Ridges Hospital,undefined
[14] Sickle Cell Foundation of Minnesota,undefined
[15] Children’s Minnesota,undefined
[16] Fairview,undefined
[17] CentraCare,undefined
[18] Rebiotix Inc.,undefined
[19] PreferredOne®,undefined
[20] Be the Match,undefined
来源：
Orphanet Journal of Rare Diseases | / 17卷
关键词：
Rare disease; Stigma; Depression; Anxiety; Patient satisfaction; Health-related quality of life;
D O I：
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