Communication of genetic information within families: The case for familial comity

被引:0
|
作者
Davey A. [1 ]
Newson A. [2 ]
O’Leary P. [1 ]
机构
[1] Genomics Directorate, Department of Health, PO Box 8172, Stirling Street, Perth, 6849, WA
[2] Centre for Ethics in Medicine, University of Bristol, Bristol
关键词
Clinical; Confidentiality; Ethics; Family; Genetic privacy; Genetics;
D O I
10.1007/s11673-006-9022-5
中图分类号
学科分类号
摘要
Advances in genetic technologies raise a multitude of ethical issues, some of which give rise to novel dilemmas for medical practice. One of the most controversial problems arising in clinical genetics is that of confidentiality and who may disclose genetic health information. This paper considers the question of when it is appropriate for health professionals to disclose clinically significant genetic information without patient consent. Existing ethical principles offer little guidance in relation to this issue. We build on suggestions that genetic information may be viewed as collective or shared information, and we introduce the concept of ‘familial comity’ as a fresh way to consider the issues. © Springer Science + Business Media B.V. 2006.
引用
收藏
页码:161 / 166
页数:5
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