Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies

被引：0
|
作者：
Nicola Bonner
Linda Abetz-Webb
Lydie Renault
Teresa Caballero
Hilary Longhurst
Marcus Maurer
Sandra Christiansen
Bruce Zuraw
机构：
[1] Adelphi Values,University Hospital, La Paz, Hospital La Paz Institute for Health Research (IdiPaz)
[2] Adelphi Mill,Department of Immunology
[3] Shire International GmbH,Department of Dermatology and Allergy
[4] Biomedical Research Network on Rare Diseases-U754 (CIBERER),Medicine Division Allergy/ Immunology and US HAEA Angioedema Center
[5] Barts Health NHS Trust,Department of Medicine
[6] Allergie-Centrum-Charité,undefined
[7] Charité - Universitätsmedizin Berlin,undefined
[8] University of California,undefined
[9] Division of Rheumatology,undefined
[10] Allergy and Immunology,undefined
[11] UC San Diego School of Medicine,undefined
[12] San Diego Veterans Hospital,undefined
来源：
Health and Quality of Life Outcomes | / 13卷
关键词：
Hereditary angioedema; Patient reported outcome; Questionnaire; Qualitative; Patient; Concept elicitation; Cognitive debriefing; Content validity;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
相关论文
共 50 条
  • [1] Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies
    Bonner, Nicola
    Abetz-Webb, Linda
    Renault, Lydie
    Caballero, Teresa
    Longhurst, Hilary
    Maurer, Marcus
    Christiansen, Sandra
    Zuraw, Bruce
    [J]. HEALTH AND QUALITY OF LIFE OUTCOMES, 2015, 13
  • [2] DEVELOPMENT AND VALIDATION OF A PATIENT-REPORTED OUTCOMES QUESTIONNAIRE FOR THE ASSESSMENT OF HEREDITARY ANGIOEDEMA IN OBSERVATIONAL STUDIES
    Bonner, N.
    Abetz, L.
    Renault, L.
    Caballero, T.
    [J]. VALUE IN HEALTH, 2012, 15 (07) : A558 - A558
  • [3] DEVELOPMENT AND VALIDATION OF A PATIENT-REPORTED OUTCOME QUESTIONNAIRE FOR THE ASSESSMENT OF HEREDITARY ANGIOEDEMA IN OBSERVATIONAL STUDIES
    Bonner, N.
    Abetz-Webb, L.
    Renault, L.
    Caballero, T.
    Longhurst, H.
    Maurer, M.
    Christiansen, S.
    Zuraw, B.
    Bollington, I.
    [J]. ANNALS OF ALLERGY ASTHMA & IMMUNOLOGY, 2013, 111 (05) : A49 - A49
  • [4] DEVELOPMENT AND CONTENT VALIDITY TESTING OF THE PATIENT-REPORTED OUTCOMES OF FATIGUE IN CANCER (PROOF-C) SYMPTOM SEVERITY ASSESSMENT (SSA)
    Yaworsky, A.
    Ojo, O.
    Foley, C.
    Bonthapally, V
    Ma, E.
    Norquist, J.
    Pompilus, F.
    Pearson, J.
    Park, J.
    Arbuckle, R.
    [J]. VALUE IN HEALTH, 2015, 18 (03) : A210 - A210
  • [5] DEVELOPMENT AND CONTENT VALIDITY OF THE PATIENT-REPORTED INTRAOCULAR LENS QUESTIONNAIRE (PR-ILQ)
    Shields, A.
    Galipeau, N.
    Chacko, J.
    Mazar, I
    Bowyer, B.
    [J]. VALUE IN HEALTH, 2017, 20 (05) : A250 - A250
  • [6] Development of a questionnaire to measure patient-reported postoperative recovery: content validity and intra-patient reliability
    Allvin, Renee
    Ehnfors, Margareta
    Rawal, Narinder
    Svensson, Elisabeth
    Idvall, Ewa
    [J]. JOURNAL OF EVALUATION IN CLINICAL PRACTICE, 2009, 15 (03) : 411 - 419
  • [7] Content validity and readability of patient-reported questionnaire instruments of hearing disability
    Manchaiah, Vinaya
    Granberg, Sarah
    Grover, Vibhu
    Saunders, Gabrielle H.
    Hall, Deborah Ann
    [J]. INTERNATIONAL JOURNAL OF AUDIOLOGY, 2019, 58 (09) : 565 - 575
  • [8] Analysis of disease burden in patients with hereditary angioedema from Japan by patient-reported outcomes
    Hide, Michihiro
    Kishimoto, Miwa
    Kotera, Ippei
    Oh, Akinori
    Inoue, Yoichi
    Yamamoto, Beverley Anne
    Noto, Shinichi
    [J]. JOURNAL OF DERMATOLOGY, 2024,
  • [9] Validity of the Hypoglycemia Perspectives Questionnaire: A Patient-Reported Outcomes Instrument to Assess Hypoglycemia
    Gupta, Shaloo
    Victor, Timothy W.
    Dibonaventura, Marco D.
    Ong, Siew H.
    Gwaltney, Chad
    [J]. DIABETES, 2013, 62 : A588 - A588
  • [10] Patient-Reported Outcomes Among Patients With Hereditary Angioedema Within Underrepresented Racial or Ethnic Groups
    Craig, Timothy
    Baptist, Alan
    Anderson, John
    Zaragoza-Urdaz, Rafael
    Burnette, Autumn
    Kelbel, Theodore
    Riedl, Marc
    Vanegas, Alejandro
    Boyle, Kimberly
    Schultz, Bob
    Blair, Chris
    Sing, Krystal
    Fox, Daniel
    Juethner, Salome
    [J]. JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY, 2024, 153 (02) : AB81 - AB81
12345