Support Group Value and Design for Parents of Children with Severe or Profound Intellectual and Developmental Disabilities

被引：0

作者：

Jeffrey B. Jackson

Sarah R. Steward

Susanne Olsen Roper

Bertranna A. Muruthi

机构：

[1] Virginia Tech,Marriage & Family Therapy Program

[2] Brigham Young University,School of Family Life

来源：

Journal of Autism and Developmental Disorders | 2018年 / 48卷

关键词：

Support group; Parents; Children with developmental disabilities; Children with intellectual disability;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

The purpose of this study was to interview parents of children with severe or profound intellectual and developmental disabilities to determine the perceived value of support groups and identify recommendations for support group design based on their experiences and feedback. Despite varied experiences with support groups, most parents indicated the value of support groups is in providing a place where parents can feel understood and both share and gather information. Parents recommended support groups be targeted for parents of children with similar disabilities and needs, have flexible structures and qualified leaders, and offer a wide variety of content in various formats. Given parental recommendations for support group design varied, summary recommendations addressing a wide range of preferences are provided.

引用

页码：4207 / 4221

页数：14

共 50 条

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