Patient and public involvement in reducing health and care research waste

被引:38
|
作者
Minogue V. [1 ]
Cooke M. [2 ]
Donskoy A.-L. [3 ]
Vicary P. [4 ]
Wells B. [5 ]
机构
[1] Quarry House, Quarry Hill, Leeds
[2] University of Manchester, Manchester
[3] University of the West of England, Bristol
[4] University of East Anglia, Norfolk and Norwich University Hospital Trust, Norwich
[5] FCMA, Oxford Health NHS Foundation Trust, 4000 John Smith Drive, Oxford Business Park South, Oxford
关键词
Implementation; Patient benefit; Patient involvement; Prioritisation; Publication; Reducing research waste; Research design;
D O I
10.1186/s40900-018-0087-1
中图分类号
学科分类号
摘要
Background Eighty five per cent of health research expenditure is potentially wasted due to failure to publish research, unclear reporting of research that is published, and the failure of new research studies to systematically review previous research in the same topic area, poor study design and conduct. A great deal of progress has been made to address this issue but the role of patients and the public has not been considered. Main A small survey was undertaken, as part of a larger programme of work on reducing health and care waste, to understand the role of patients in reducing research waste. The study showed that patients are interested in this issue particularly in relation to the prioritisation of research and patient and public involvement. Conclusions Patients undertake key roles in the research process including co-applicancy, project management, or as co-researchers. This brings responsibility for ensuring high quality research and value for money. Responsibility for recognition of the potential for wasteful practices is part of the conduct and operation of research studies. © The Author(s).
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