Evaluation of the quality of patient involvement in a patient-led analysis of the lived experience of a rare disease

被引:0
|
作者
Dawn Lobban
Jacqui Oliver
Kelly Davio
Kenza Seddik
Veronica Porkess
机构
[1] Envision Pharma Group,Patient Author
[2] MG Patient Advocate,undefined
[3] UCB Pharma,undefined
[4] UCB Pharma,undefined
关键词
Lived experience; Myasthenia gravis; Patient and public involvement; Patient author; Patient perspective; Qualitative research;
D O I
10.1186/s40900-023-00445-2
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