Awareness and agreement with neurofibromatosis care guidelines among U.S. neurofibromatosis specialists

被引：0
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作者：
Vanessa L. Merker
Pamela Knight
Heather B. Radtke
Kaleb Yohay
Nicole J. Ullrich
Scott R. Plotkin
Justin T. Jordan
机构：
[1] Massachusetts General Hospital,Department of Neurology and Cancer Center
[2] VA Bedford Healthcare System,Center for Healthcare Organization and Implementation Research (CHOIR)
[3] Children’s Tumor Foundation,Division of Genetics
[4] Medical College of Wisconsin,Department of Neurology
[5] NYU Langone Health,Department of Neurology
[6] Boston Children’s Hospital,undefined
来源：
Orphanet Journal of Rare Diseases | / 17卷
关键词：
Neurofibromatosis 1; Neurofibromatosis 2; Schwannomatosis; Practice guidelines; Rare diseases; Implementation science;
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