Giving Voice to Patients: Developing a Discussion Method to Involve Patients in Translational Research

被引：0
|
作者：
Marianne Boenink
Lieke van der Scheer
Elisa Garcia
Simone van der Burg
机构：
[1] University of Twente,Department of Philosophy, Faculty of BMS
[2] Free University Medical Centre,Departments of Social Medicine and Community Genetics
[3] Wageningen University and Research,undefined
来源：
NanoEthics | 2018年 / 12卷
关键词：
Translational research; Patient involvement; Experiential knowledge; Biomedical innovation; Research and development; Discussion method;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
Biomedical research policy in recent years has often tried to make such research more ‘translational’, aiming to facilitate the transfer of insights from research and development (R&D) to health care for the benefit of future users. Involving patients in deliberations about and design of biomedical research may increase the quality of R&D and of resulting innovations and thus contribute to translation. However, patient involvement in biomedical research is not an easy feat. This paper discusses the development of a method for involving patients in (translational) biomedical research aiming to address its main challenges.
引用
收藏
页码：181 / 197
页数：16
相关论文
共 50 条
  • [1] Giving Voice to Patients: Developing a Discussion Method to Involve Patients in Translational Research
    Boenink, Marianne
    van der Scheer, Lieke
    Garcia, Elisa
    van der Burg, Simone
    [J]. NANOETHICS, 2018, 12 (03) : 181 - 197
  • [2] DEVELOPING A PATIENT VISION: GIVING PATIENTS A VOICE
    Coady, David
    West, Louise
    [J]. RHEUMATOLOGY, 2012, 51 : 174 - 174
  • [3] Giving voice to patients
    Corboy, John R.
    [J]. NEUROLOGY-CLINICAL PRACTICE, 2019, 9 (01) : 1 - 1
  • [4] GIVING PATIENTS A VOICE
    RISSMEYER, DJ
    [J]. HOSPITAL AND COMMUNITY PSYCHIATRY, 1988, 39 (04): : 443 - 443
  • [5] Giving voice to the voiceless: how to involve vulnerable migrants in healthcare research
    van den Muijsenbergh, Maria
    Teunissen, Erik
    van Weel-Baumgarten, Evelyn
    van Weel, Chris
    [J]. BRITISH JOURNAL OF GENERAL PRACTICE, 2016, 66 (647): : 284 - 285
  • [6] Assessing quality Giving patients a voice
    Beaulieu, Marie-Dominique
    [J]. CANADIAN FAMILY PHYSICIAN, 2013, 59 (03) : 317 - 317
  • [7] Survivors as teachers - giving patients a voice
    Thomas, Josephine Suzanne
    Marker, Julie
    [J]. CLINICAL TEACHER, 2021, 18 (04): : 381 - 383
  • [8] Developing a PROM to evaluate self-management in diabetes (HASMID): giving patients a voice
    Carlton, Jill
    Rowen, Donna
    Elliott, Jackie
    Brazier, John
    Stevens, Katherine
    Basarir, Hasan
    Labeit, Alex
    [J]. HEALTH AND QUALITY OF LIFE OUTCOMES, 2016, 14
  • [9] Developing a PROM to evaluate self-management in diabetes (HASMID): giving patients a voice
    Carlton, Jill
    Elliott, Jackie
    Stevens, Katherine
    Rowen, Donna
    Basarir, Hasan
    Meadows, Keith
    Brazier, John E.
    [J]. QUALITY OF LIFE RESEARCH, 2016, 25 : 69 - 69
  • [10] A voice for research, a voice for patients
    Perry, D
    [J]. PLOS BIOLOGY, 2004, 2 (06): : 738 - 739
12345