Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance

被引：0
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作者：
Gerda Mickute
Kristina Staley
Heather Delaney
Oliver Gardiner
Amy Hunter
Richard Keen
Lorraine Lockhart
Nick Meade
Maria Newman
Stuart Ralston
Elaine Rush
Sheela Upadhyaya
Sandra Regan
Laura Watts
Jennifer Walsh
Paul White
Roger M. Francis
M. Kassim Javaid
机构：
[1] University of Oxford,Somerville College
[2] Montague House,MRC Institute of Genetics and Molecular Medicine
[3] Patient representative,NIHR Musculoskeletal Biomedical Research Unit
[4] FDSS UK,Metabolic Bone Centre
[5] Patient representative,Translational and Clinical Research Institute
[6] XLH Network,The Botnar Research Centre, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences
[7] Genetic Alliance UK,undefined
[8] Royal National Orthopaedic Hospital,undefined
[9] Patient,undefined
[10] Patient,undefined
[11] University of Edinburgh,undefined
[12] Independent Adviser of the James Lind Alliance,undefined
[13] NIHR Oxford Biomedical Research Centre Project Manager,undefined
[14] University of Oxford,undefined
[15] Sheffield Teaching Hospitals NHS Foundation Trust,undefined
[16] Newcastle University,undefined
[17] University of Oxford,undefined
来源：
Orphanet Journal of Rare Diseases | / 15卷
关键词：
James Lind Alliance; Priority setting partnership; Fibrous dysplasia/McCune-Albright syndrome; X-linked hypophosphatemia; Osteogenesis imperfecta; Rare musculoskeletal diseases; Research priorities; Patient and public involvement; Research mismatch;
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