Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases

被引：0
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作者：
Annemarie E. M. Post
Thomas Klockgether
G. Bernhard Landwehrmeyer
Massimo Pandolfo
Astri Arnesen
Carola Reinhard
Holm Graessner
机构：
[1] University of Tübingen,Institute for Medical Genetics and Applied Genomics
[2] University Hospital Tübingen,Centre for Rare Diseases
[3] University of Bonn,Department of Neurology
[4] German Center for Neurodegenerative Diseases (DZNE),Department of Neurology
[5] University of Ulm,Service of Neurology, Erasme Hospital, and Laboratory of Experimental Neurology
[6] Université Libre de Bruxelles,undefined
[7] European Huntington Association (President),undefined
来源：
Orphanet Journal of Rare Diseases | / 16卷
关键词：
Rare diseases; Patient involvement; Research themes;
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