“Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults

被引:0
|
作者
Rozanna Lilley
Wenn Lawson
Gabrielle Hall
Joanne Mahony
Hayley Clapham
Melanie Heyworth
Samuel Arnold
Julian Trollor
Michael Yudell
Elizabeth Pellicano
机构
[1] Macquarie University,Macquarie School of Education
[2] Cooperative Research Centre for Living With Autism (Autism CRC),Department of Developmental Disability Neuropsychiatry (3DN), School of Psychiatry
[3] Independent autistic advisor,College of Health Solutions
[4] UNSW Sydney,Department of Clinical, Educational and Health Psychology
[5] Arizona State University,undefined
[6] University College London,undefined
来源
Journal of Autism and Developmental Disorders | 2023年 / 53卷
关键词
Autism; Late-diagnosed adults; Participatory research; Identity; Family; Community;
D O I
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学科分类号
摘要
In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: ‘conceptualising the Autistic family’, ‘creating Autistic community’, and ‘contesting Autistic identity’. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.
引用
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页码:1146 / 1161
页数:15
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