Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research

被引：0
|
作者：
Shelley Vanderhout
Beth K. Potter
Maureen Smith
Nancy J. Butcher
Jordan Vaters
Pranesh Chakraborty
John Adams
Michal Inbar-Feigenberg
Martin Offringa
Kathy Speechley
Yannis Trakadis
Ariella Binik
机构：
[1] University of Ottawa,School of Epidemiology and Public Health
[2] Canadian Organization for Rare Disorders,Patient Partner
[3] Canadian PKU and Allied Disorders,Patient Partner
[4] Inc.,The Hospital for Sick Children Research Institute
[5] Peter Gilgan Centre for Research & Learning,Department of Psychiatry, Faculty of Medicine
[6] University of Toronto,Newborn Screening Ontario
[7] Children’s Hospital of Eastern Ontario,Department of Philosophy
[8] McMaster University,Department of Paediatrics
[9] University of Western Ontario,Department of Human Genetics
[10] The Hospital for Sick Children,undefined
[11] McGill University,undefined
来源：
Quality of Life Research | 2023年 / 32卷
关键词：
Patient-reported outcomes; Children; Research ethics; Data sharing;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
页码：2319 / 2328
页数：9
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