The European Rare Kidney Disease Registry (ERKReg): objectives, design and initial results

被引：0

作者：

Giulia Bassanese

Tanja Wlodkowski

Aude Servais

Laurence Heidet

Dario Roccatello

Francesco Emma

Elena Levtchenko

Gema Ariceta

Justine Bacchetta

Giovambattista Capasso

Augustina Jankauskiene

Marius Miglinas

Pietro Manuel Ferraro

Giovanni Montini

Jun Oh

Stephane Decramer

Tanja Kersnik Levart

Jack Wetzels

Elisabeth Cornelissen

Olivier Devuyst

Aleksandra Zurowska

Lars Pape

Anja Buescher

Dieter Haffner

Natasa Marcun Varda

Gian Marco Ghiggeri

Giuseppe Remuzzi

Martin Konrad

Germana Longo

Detlef Bockenhauer

Atif Awan

Ilze Andersone

Jaap W. Groothoff

Franz Schaefer

机构：

[1] University of Heidelberg,Division of Pediatric Nephrology, Center for Pediatrics and Adolescent Medicine

[2] Université de Paris,Nephrology and Transplantation Department, Centre de Référence des Maladies Rénales Héréditaires de l’Enfant et de l’Adulte, Necker University Hospital, APHP

[3] Hôpital Universitaire Necker-Enfants Malades,APHP, Pediatric Nephrology Unit, Centre de Référence des Maladies Rénales Héréditaires de l’Enfant et de l’Adulte (MARHEA)

[4] University of Turin,Nephrology and Dialysis Unit, San Giovanni Hub Hospital and Department of Clinical and Biological Sciences

[5] Bambino Gesù Children’s Hospital IRCCS,Division of Nephrology

[6] University of Leuven,Department of Pediatric Nephrology and Development and Regeneration, University Hospitals Leuven,

[7] Hospital Universitario Vall d’Hebron,Department of Paediatric Nephrology

[8] University Children’s Hospital,Department of Paediatric Nephrology, Rheumatology and Dermatology, Reference Center for Rare Renal Diseases, Reference Center for Rare Diseases of Calcium and Phosphorus

[9] University Luigi Vanvitelli,Department of Translational Medical Sciences

[10] Vilnius University,Vilnius University Hospital Santaros Klinikos, Pediatric Center

[11] Vilnius University,Vilnius University Hospital Santaros Klinikos, Nephrology Center

[12] Fondazione Policlinico Universitario A. Gemelli IRCCS,U.O.S. Terapia Conservativa della Malattia Renale Cronica, U.O.C. Nefrologia, Dipartimento di Scienze Mediche e Chirurgiche

[13] Policlinico di Milano,Pediatric Nephrology, Dialysis and Transplant Unit, Fondazione Ca’ Granda IRCCS

[14] University of Milano,Department of Clinical Sciences and Community Health

[15] University Medical Center Hamburg-Eppendorf,Department of Pediatrics

[16] University Children’s Hospital,Pediatric Nephrology, Internal Medicine and Rhumatology, Southwest Renal Rares Diseases Centre (SORARE)

[17] University Medical Centre Ljubljana,Pediatric Nephrology Department, Children’s Hospital

[18] Radboud University Medical Center,Department of Pediatric Nephrology, Radboudumc

[19] Amalia Children’s Hospital,Mechanisms of Inherited Kidney Disorders Group, Institute of Physiology

[20] Division of Nephrology,Department of Pediatrics, Nephrology and Hypertension

[21] UCLouvain Medical School,Department of Pediatrics II, University Hospital of Essen

[22] University of Zurich,Department of Pediatric Kidney, Liver and Metabolic Diseases

[23] Medical University of Gdansk,Department of Pediatrics

[24] University Duisburg-Essen,Division of Nephrology, Dialysis and Transplantation, Scientific Institute for Research and Health Care

[25] Hannover Medical School,Clinical Research Centre for Rare Diseases ‘Aldo e Cele Daccò’

[26] University Medical Center Maribor,Department of Paediatric Nephrology

[27] IRCCS Istituto Giannina Gaslini,Pediatric Nephrology, Dialysis and Transplant Unit, Department of Women’s and Children’s Health

[28] Istituto di Ricerche Farmacologiche Mario Negri IRCCS,Department of Renal Medicine, University College London and Paediatric Nephrology Unit, Great Ormond Street Hospital for Children

[29] University Children’s Hospital,Department of Nephrology

[30] University Hospital of Padua,Department of Pediatric Nephrology

[31] NHS Foundation Trust,undefined

[32] Children’s Health Ireland,undefined

[33] Pediatric Clinic,undefined

[34] Children’s Clinical University Hospital,undefined

[35] Amsterdam University Medical Center,undefined

来源：

Orphanet Journal of Rare Diseases | / 16卷

关键词：

European Rare Kidney Disease Reference Network (ERKNet); Registry; Epidemiology; Nephrology; Pediatric nephrology;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

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[1] The European Rare Kidney Disease Registry (ERKReg): objectives, design and initial results
Bassanese, Giulia
Wlodkowski, Tanja
Servais, Aude
Heidet, Laurence
Roccatello, Dario
Emma, Francesco
Levtchenko, Elena
Ariceta, Gema
Bacchetta, Justine
Capasso, Giovambattista
Jankauskiene, Augustina
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Ferraro, Pietro Manuel
Montini, Giovanni
Oh, Jun
Decramer, Stephane
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Ghiggeri, Gian Marco
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