A systematic literature review of evidence-based clinical practice for rare diseases: what are the perceived and real barriers for improving the evidence and how can they be overcome?

被引：0
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作者：
Ana Rath
Valérie Salamon
Sandra Peixoto
Virginie Hivert
Martine Laville
Berenice Segrestin
Edmund A. M. Neugebauer
Michaela Eikermann
Vittorio Bertele
Silvio Garattini
Jørn Wetterslev
Rita Banzi
Janus C. Jakobsen
Snezana Djurisic
Christine Kubiak
Jacques Demotes-Mainard
Christian Gluud
机构：
[1] Orphanet,Centre de Recherche en Nutrition Humaine Rhone
[2] Institut National de la Santé et de la Recherche Médicale (INSERM),Alpes
[3] EURORDIS – European Organisation for Rare Diseases,Copenhagen Trial Unit, Centre for Clinical Intervention Research, Department 7812
[4] Université de Lyon 1,Department of Cardiology
[5] Hospices Civils de Lyon,undefined
[6] Groupement Hospitaler Sud,undefined
[7] Brandenburg Medical School,undefined
[8] Neuruppin,undefined
[9] and Witten/Herdecke University,undefined
[10] Institute for Research in Operative Medicine,undefined
[11] Witten/Herdecke University,undefined
[12] Witten and Brandenburg Medical School,undefined
[13] IRCCS Istituto di Ricerche Farmacologiche Mario Negri,undefined
[14] Rigshospitalet,undefined
[15] Copenhagen University Hospital,undefined
[16] Holbæk Hospital,undefined
[17] European Clinical Research Infrastructure Network (ECRIN),undefined
来源：
Trials | / 18卷
关键词：
Randomised clinical trials; Evidence-based clinical practice; Evidence-based medicine; Assessment; Specific barriers; Rare diseases; ECRIN; European Clinical Infrastructure Networks;
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