Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study

被引：0
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作者：
D. Pougheon Bertrand
A. Fanchini
P. Lombrail
G. Rault
A. Chansard
N. Le Breton
C. Frenod
F. Milon
C. Heymes-Royer
D. Segretain
M. Silber
S. Therouanne
J. Haesebaert
C. Llerena
P. Michel
Q. Reynaud
机构：
[1] Sorbonne Paris Nord University,Laboratory of Education and Health Practices (LEPS) UR3412
[2] Hôpital Couple-Enfants,Centre de Ressources et de Compétences mucoviscidose
[3] Claude Bernard Lyon 1 University,Laboratory RESHAPE U. INSERM 1290
[4] Hospices Civils de Lyon,Quality and Security Department
[5] Hôpital Lyon Sud,Centre de Ressources et de Compétences mucoviscidose
[6] CHU Lille,Centre de Ressources et de Compétences mucoviscidose
[7] Cystic Fibrosis Patient and Parent Co-Investigators Group,undefined
来源：
Orphanet Journal of Rare Diseases | / 17卷
关键词：
Collaborative research; Patient partnership; Patient experience; Patient-reported experience measures; Cystic fibrosis care; Quality improvement;
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