Involving patients in healthcare research is well documented but can it work in lab-based research?

被引:0
|
作者
Adele E. Connor
Claire Hughes
Lea Schäfer
Lorraine McNally
Deirdre O’ Raw
Katayoun Bahramian
Bridget Carr
Ingrid Halligan Dunne
Joanne Lysaght
Sharon A. O’ Toole
Jeremy C. Simpson
Antoinette S. Perry
机构
[1] University College Dublin,School of Biology and Environmental Science
[2] University College Dublin,Cancer Biology and Therapeutics Laboratory, Conway Institute of Biomolecular and Biomedical Research
[3] University College Dublin,Cell Screening Laboratory
[4] OvaCare,Cancer Immunology and Immunotherapy Group, Department of Surgery, Trinity Translational Medicine Institute
[5] Trinity College Dublin,Department Obstetrics and Gynaecology
[6] Trinity College Dublin,Conway Institute of Biomolecular and Biomedical Research
[7] OvaCare Board and Medical Panel,undefined
[8] University College Dublin,undefined
关键词
PPI; Ovarian cancer; Precision medicine; Translational research;
D O I
10.1186/s40900-023-00500-y
中图分类号
学科分类号
摘要
Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little guidance available for PPI in lab-based research. In this piece we discuss our experience of how we have successfully involved patients in our translational cancer research, which is focused on developing personalised treatment for high-grade serous ovarian cancer. We discuss the benefits it has made to both our research and to us as researchers. The patients involved write about their experience, what they enjoyed, and the benefits they felt. Although PPI is quite topical and is being widely discussed, there is hesitancy among researchers, especially those in lab-based research about getting started because of a lack of practical guidance about how to implement it. Here, we have shared our experience, hopefully providing a practical example of how PPI can be incorporated into a lab-based research project.
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