Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review

被引：0
|
作者：
Vanessa C. Delisle
Stephanie T. Gumuchian
Danielle B. Rice
Alexander W. Levis
Lorie A. Kloda
Annett Körner
Brett D. Thombs
机构：
[1] McGill University,
[2] Lady Davis Institute,undefined
[3] Jewish General Hospital,undefined
[4] Concordia University,undefined
来源：
The Patient - Patient-Centered Outcomes Research | 2017年 / 10卷
关键词：
Support Group; Rare Disease; Scleroderma; Acoustic Neuroma; Idiopathic Pulmonary Arterial Hypertension;
D O I：
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中图分类号：
学科分类号：
摘要：
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页码：283 / 293
页数：10
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    Thombs, Brett D.
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