Living with a rare disease - experiences and needs in pediatric patients and their parents

被引：0
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作者：
Stefanie Witt
Katharina Schuett
Silke Wiegand-Grefe
Johannes Boettcher
Julia Quitmann
机构：
[1] University Medical Center Hamburg-Eppendorf,Department of Medical Psychology, Center for Psychosocial Medicine
[2] University Medical Center Hamburg-Eppendorf,Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy
[3] University of Applied Sciences Hamburg,Faculty of Business and Social Sciences
来源：
Orphanet Journal of Rare Diseases | / 18卷
关键词：
Pathway to care; Psychosocial care; Pediatric patients; Parents; Rare chronic health conditions; Rare diseases; Qualitative study;
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