International severe asthma registry (ISAR): protocol for a global registry

被引：0

作者：

J. Mark FitzGerald

Trung N. Tran

Marianna Alacqua

Alan Altraja

Vibeke Backer

Leif Bjermer

Unnur Bjornsdottir

Arnaud Bourdin

Guy Brusselle

Lakmini Bulathsinhala

John Busby

Giorgio W. Canonica

Victoria Carter

Isha Chaudhry

You Sook Cho

George Christoff

Borja G. Cosio

Richard W. Costello

Neva Eleangovan

Peter G. Gibson

Liam G. Heaney

Enrico Heffler

Mark Hew

Naeimeh Hosseini

Takashi Iwanaga

David J. Jackson

Rupert Jones

Mariko S. Koh

Thao Le

Lauri Lehtimäki

Dora Ludviksdottir

Anke H. Maitland-van der Zee

Andrew Menzies-Gow

Ruth B. Murray

Nikolaos G. Papadopoulos

Luis Perez-de-Llano

Matthew Peters

Paul E. Pfeffer

Todor A. Popov

Celeste M. Porsbjerg

Chris A. Price

Chin K. Rhee

Mohsen Sadatsafavi

Yuji Tohda

Eileen Wang

Michael E. Wechsler

James Zangrilli

David B. Price

机构：

[1] The Institute for Heart Lung Health,Department of Pulmonary Medicine

[2] AstraZeneca,Center of Physical Activity Research

[3] University of Tartu and Lung Clinic,Department of Respiratory Medicine & Allergology

[4] Tartu University Hospital,Faculty of Medicine

[5] Rigshospitalet and Copenhagen University,Department of Respiratory Diseases

[6] Skåne University Hospital,Department of Respiratory Medicine

[7] University of Iceland,Departments of Epidemiology and Respiratory Medicine

[8] Montpellier University Hospitals,Centre for Public Health

[9] Hopital Arnaud de Villeneuve and PhyMed Exp (INSERM U 1046,Personalized Medicine Asthma & Allergy Clinic

[10] CNRS UMR9214),Division of Allergy, Department of Medicine

[11] Universite de Montpellier,Faculty of Public Health

[12] Ghent University Hospital,Clinical Research Centre

[13] Erasmus Medical Center Rotterdam,Australasian Severe Asthma Network, Priority Research Centre for Healthy Lungs

[14] Optimum Patient Care,Department of Respiratory and Sleep Medicine

[15] Queen’s University Belfast,Centre for Experimental Medicine

[16] Humanitas University & Research Hospital,Department of Respiratory Medicine & Allergology, Faculty of Medicine

[17] SANI-Severe Asthma Network Italy,Faculty of Medicine & Dentistry

[18] Asan Medical Center,Department of Respiratory & Critical Care Medicine

[19] College of Medicine,Allergy Centre

[20] University of Ulsan,Department of Respiratory Medicine, Faculty of Medicine

[21] Medical University – Sofia,Pneumology Service

[22] Son Espases University Hospital-IdISBa-Ciberes,UK Severe Asthma Network

[23] Smurfit Building Beaumont Hospital and Department of Respiratory Medicine,Faculty of Pharmaceutical Sciences

[24] RCSI,Division of Allergy & Clinical Immunology, Department of Medicine, National Jewish Health and Division of Allergy & Clinical Immunology, Department of Internal Medicine

[25] University of Newcastle,Academic Primary Care, Division of Applied Health Sciences

[26] Hunter Medical Research Institute,undefined

[27] John Hunter Hospital,undefined

[28] Queen’s University Belfast,undefined

[29] Alfred Health & Monash University,undefined

[30] Kindai University Hospital,undefined

[31] Guy’s & St Thomas’ NHS Trust and King’s College London,undefined

[32] University of Plymouth,undefined

[33] Singapore General Hospital and Duke-National University Singapore Medical School,undefined

[34] Tampere University Hospital and Tampere University,undefined

[35] Landspitali University Hospital and University of Iceland,undefined

[36] University of Amsterdam,undefined

[37] Royal Brompton & Harefield NHS Foundation Trust,undefined

[38] University of Athens,undefined

[39] University of Manchester,undefined

[40] Hospital Universitario Lucus Augusti,undefined

[41] University of Sydney Medical School,undefined

[42] Barts Health NHS Trust and Queen Mary University of London,undefined

[43] University Hospital “Sv. Ivan Rilski”,undefined

[44] Bispebjerg Hospital,undefined

[45] Copenhagen University,undefined

[46] The Catholic University of Korea,undefined

[47] University of British Columbia,undefined

[48] University of Colorado Hospital,undefined

[49] Division of Pulmonary,undefined

[50] Critical Care and Sleep Medicine,undefined

来源：

BMC Medical Research Methodology | / 20卷

关键词：

Disease registry; Protocol; Real-world; Severe asthma;

D O I：

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中图分类号：

学科分类号：

摘要：

引用

共 50 条

[1] International severe asthma registry (ISAR): protocol for a global registry
FitzGerald, J. Mark
Tran, Trung N.
Alacqua, Marianna
Altraja, Alan
Backer, Vibeke
Bjermer, Leif
Bjornsdottir, Unnur
Bourdin, Arnaud
Brusselle, Guy
Bulathsinhala, Lakmini
Busby, John
Canonica, Giorgio W.
Carter, Victoria
Chaudhry, Isha
Cho, You Sook
Christoff, George
Cosio, Borja G.
Costello, Richard W.
Eleangovan, Neva
Gibson, Peter G.
Heaney, Liam G.
Heffler, Enrico
Hew, Mark
Hosseini, Naeimeh
Iwanaga, Takashi
Jackson, David J.
Jones, Rupert
Koh, Mariko S.
Le, Thao
Lehtimaki, Lauri
Ludviksdottir, Dora
Maitland-van der Zee, Anke H.
Menzies-Gow, Andrew
Murray, Ruth B.
Papadopoulos, Nikolaos G.
Perez-de-Llano, Luis
Peters, Matthew
Pfeffer, Paul E.
Popov, Todor A.
Porsbjerg, Celeste M.
Price, Chris A.
Rhee, Chin K.
Sadatsafavi, Mohsen
Tohda, Yuji
Wang, Eileen
Wechsler, Michael E.
Zangrilli, James
Price, David B.
[J]. BMC MEDICAL RESEARCH METHODOLOGY, 2020, 20 (01)
[2] INTERNATIONAL SEVERE ASTHMA REGISTRY (ISAR): PROTOCOL FOR A GLOBAL REGISTRY
Price, David
Heaney, Liam G.
Hew, Mark
Gibson, Peter
Menzies-Gow, Andrew
Peters, Matthew
Trung Tran
Zangrilli, Jim
[J]. RESPIROLOGY, 2019, 24 : 59 - 59
[3] International severe asthma registry (ISAR): Mission statement
Canonica, G. W.
Price, D.
[J]. ALLERGY, 2019, 74 : 717 - 717
[4] International Severe Asthma Registry (ISAR): The Story so Far
Price, D. B.
Canonica, G.
[J]. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2019, 199
[5] A Global Survey of Blood Eosinophil Distribution in Severe Asthma Patients: Data from the International Severe Asthma Registry (ISAR)
Jackson, D.
Busby, J.
Heaney, L. G.
Menzies-Gow, A.
Pfeffer, P.
Perez-de-Llano, L.
Cosio, B. G.
Al-Ahmad, M.
FitzGerald, J.
Sadatsafavi, M.
Alacqua, M.
Bulathsinhala, L.
Canonica, G.
Carter, V. A.
Chaudhry, I.
Christoff, G. C.
Costello, R. W.
Heffler, E.
Iwanaga, T.
Kerkhof, M.
Rhee, C.
Murray, R.
Papadopolous, N. G.
Papaioannou, A. I.
Popov, T. A.
Price, C.
Tohda, Y.
Tran, T. N.
Wang, E.
Wechsler, M. E.
Zangrilli, J.
Price, D.
[J]. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2020, 201
[6] Development of the International Severe Asthma Registry (ISAR): A Modified Delphi Study
Bulathsinhala, Lakmini
Eleangovan, Nevaashni
Heaney, Liam G.
Menzies-Gow, Andrew
Gibson, Peter G.
Peters, Matthew
Hew, Mark
van Boven, Job F. M.
Lehtimaki, Lauri
van Ganse, Eric
Belhassen, Manon
Harvey, Erin S.
Perez de Llano, Luis
Maitland-van der Zee, Anke H.
Papadopoulos, Nikolaos G.
Fitzgerald, J. Mark
Porsbjerg, Celeste
Canonica, G. Walter
Backer, Vibeke
Rhee, Chin Kook
Verhamme, Katia M. C.
Buhl, Roland
Cosio, Borja G.
Carter, Victoria
Price, Chris
Le, Thao
d'Alcontres, Martina Stagno
Gopalan, Gokul
Tran, Trung N.
Price, David
[J]. JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY-IN PRACTICE, 2019, 7 (02): : 578 - +
[7] Prevalence of Comorbidities in Adults with Severe Asthma: Results from the International Severe Asthma Registry (ISAR)
Scelo, G.
Porsbjerg, C. M.
Carter, V.
Ariti, C.
Lyu, J.
Eleangovan, N.
Tran, T. N.
Barker, P.
Katial, R.
Martin, N.
Altraja, A.
Rhee, C. K.
FitzGerald, J. M.
Hansen, S.
Heaney, L. G.
Hew, M.
Siyue, M. Koh
Pfeffer, P. E.
Puggioni, F.
Tsai, M. J.
von Bulow, A.
Wang, E.
Price, D. B.
[J]. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2022, 205
[8] Clinical remission following biologic initiation in severe asthma: results of the International Severe Asthma Registry (ISAR)
Scelo, Ghislaine
Tran, Trung N.
Le, Tham T.
Faregas, Malin
Martin, Neil
Menzies-Gow, Andrew N.
Eileen, Wang
Wechsler, Michael
Canonica, Giorgio Walter
Heffler, Enrico
Heaney, Liam G.
Jackson, David J.
Pfeffer, Paul E.
Busby, John
Porsbjerg, Celeste M.
Hew, Mark
Peters, Matthew
Gibson, Peter G.
Al-Ahmad, Mona
Bergeron, Celine
Sadatsafavi, Mohsen
Perez-De-Llano, Luis
Cosio, Borja G.
Kuna, Piotr
Perng, Diahn-Warng
Iwanaga, Takashi
Torres-Duque, Carlos A.
Larenas-Linnemann, Desiree
Mahboub, Bassam
Al-Lehebi, Riyad
Fonseca, Joao A.
Rhee, Chin Kook
Maspero, Jorge
Siyue, Mariko Koh
Christoff, George C.
Popov, Todor A.
Kwiatek, Justin
Carter, Victoria
Goh, Celine
Bulathsinhala, Lakmini
Beastall, Aaron
Price, David
[J]. EUROPEAN RESPIRATORY JOURNAL, 2023, 62
[9] Real world biologic treatment response in severe asthma: an analysis of the International Severe Asthma Registry (ISAR)
Le, Tham T.
Scelo, Ghislaine
Tran, Trung N.
Faregas, Malin
Martin, Neil
Menzies-Gow, Andrew N.
Eileen, Wang
Wechsler, Michael
Canonica, Giorgio Walter
Heffler, Enrico
Heaney, Liam G.
Jackson, David J.
Pfeffer, Paul E.
Busby, John
Porsbjerg, Celeste M.
Hew, Mark
Peters, Matthew
Gibson, Peter G.
Al-Ahmad, Mona
Bergeron, Celine
Sadatsafavi, Mohsen
Perez-De-Llano, Luis
Cosio, Borja G.
Kuna, Piotr
Perng, Diahn-Warng
Iwanaga, Takashi
Torres-Duque, Carlos A.
Larenas-Linnemann, Desiree
Mahboub, Bassam
Papadopoulos, Nikolaos G.
Al-Lehebi, Riyad
Fonseca, Joao A.
Rhee, Chin Kook
Maspero, Jorge
Siyue, Mariko Koh
Christoff, George C.
Popov, Todor A.
Kwiatek, Justin
Carter, Victoria
Goh, Celine
Bulathsinhala, Lakmini
Beastall, Aaron
Price, David
[J]. EUROPEAN RESPIRATORY JOURNAL, 2023, 62
[10] CLUSTER ANALYSIS OF INFLAMMATORY BIOMARKER EXPRESSION IN THE INTERNATIONAL SEVERE ASTHMA REGISTRY (ISAR)
Denton, E.
Price, D.
Tran, T.
Canonica, G.
Menzies-Gow, A.
Fitzgerald, J.
Sadatsafavi, M.
De Llano, Prerez L.
Christoff, G.
Quinton, A.
Rhee, Kook C.
Brusselle, G.
Ulrik, C.
Lugogo, N.
Hore-Lacy, F.
Chaudhry, I
Bulathsinhala, L.
Murray, R.
Carter, V
Hew, M.
[J]. RESPIROLOGY, 2021, 26 : 21 - 21

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