A Qualitative Analysis of the Experiences of Minority Parents of Children with Autism Spectrum Disorder

被引:0
|
作者
Hall H.R. [1 ,2 ]
Fruh S. [1 ]
Zlomke K. [3 ]
Swingle H. [4 ]
机构
[1] University of South Alabama, 5721 USA North Drive, HAHN 3068, Mobile, 36688, AL
[2] University of South Alabama College of Nursing, 5721 USA North Drive, HAHN 3068, Mobile, 36688, AL
[3] University of South Alabama, UCOM 1000, 75 South University Boulevard, Mobile, 36688, AL
[4] Strada Patient Care Center, University of South Alabama, Suite 1F, 1601 Center Street, Mobile, 36604, AL
关键词
Adaptation; Autism spectrum disorder; Culture; Minority families; Qualitative;
D O I
10.1007/s41252-017-0015-7
中图分类号
学科分类号
摘要
The purpose of this study is to explore the experience of minority parents’ related to raising a child with autism spectrum disorder (ASD), with a specific focus on difficulties within communication and adaptation. Culturally and linguistically diverse families are under-represented in the literature concerning family adaptation to a child with ASD and present specific challenges for healthcare providers in providing care for families. The study involved qualitative analysis of focus groups with six culturally diverse families of children with ASD. Parents needed to discuss challenges related to spiritual support, stress, family teamwork, coping strategies, culture, resources, and their concerns for the future. The unique dialogue and stories provide talking points to discuss with parents. This study identifies the importance of communication and connecting parents with support groups and resources to help them effectively parenting a child with ASD. © 2017, Springer International Publishing.
引用
收藏
页码:79 / 88
页数:9
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