Lennox-Gastaut Syndrome (LGS): Development of conceptual models of health-related quality of life (HRQL) for caregivers and children

被引：38
|
作者：
Gallop, Katy [1 ]
Wild, Diane [1 ]
Verdian, Lara
Kerr, Mike [2 ]
Jacoby, Ann [3 ]
Baker, Gus [4 ]
Nixon, Annabel [1 ]
Cramer, Joyce A. [5 ]
机构：
[1] Oxford Outcomes Ltd, Oxford OX2 0JJ, England
[2] Cardiff Univ, Sch Med, Dept Psychol Med, Cardiff, S Glam, Wales
[3] Sch Populat Community & Behav Sci, Div Publ Hlth, Liverpool, Merseyside, England
[4] Walton Ctr Neurol & Neurosurg, Univ Dept Neurosci, Liverpool, Merseyside, England
[5] Yale Univ, Sch Med, Associate Res Scientist, Epilepsy Therapy Project, Orange, CT USA
来源：
SEIZURE-EUROPEAN JOURNAL OF EPILEPSY | 2010年 / 19卷 / 01期
关键词：
LGS; Lennox-Gastaut Syndrome; Conceptual model; Caregiver; HRQL; Quality of life; CHILDHOOD EPILEPSY; YOUTH;
D O I：
10.1016/j.seizure.2009.10.007
中图分类号：
R74 [神经病学与精神病学];
学科分类号：
摘要：
LGS is a severe form of childhood epilepsy which is characterized by multiple seizures and cognitive impairment. Semi-structured interviews were conducted with 40 parents of children with LGS in the US, UK, and Italy. Parents were asked to report on their perceptions of the HRQL of their child and also to describe the impact on their own HRQL. Thematic analysis was conducted to develop themes relating to the impact on HRQL. The themes were organized into conceptual models of the impact of LGS on the HRQL of the parent and the child. The models demonstrate the complex relationships between the components of LGS and their impact on HRQL.. (C) 2009 British Epilepsy Association. Published by Elsevier Ltd. All rights reserved.
引用
收藏
页码：23 / 30
页数：8
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