Family Attitudes and Reactions toward Pregnancy among Women with Physical Disabilities

被引:17
|
作者
Powell, Robyn M. [1 ]
Mitra, Monika [1 ]
Smeltzer, Suzanne C. [2 ]
Long-Bellil, Linda M. [3 ]
Smith, Lauren D. [1 ]
Iezzoni, Lisa I. [4 ]
机构
[1] Brandeis Univ, Heller Sch Social Policy & Management, Lurie Inst Disabil Policy, 415 South St,MS 035, Waltham, MA 02453 USA
[2] Villanova Univ, Ctr Nursing Res, Villanova, PA 19085 USA
[3] Univ Massachusetts, Med Sch, Ctr Hlth Policy & Res, Shrewsbury, MA USA
[4] Massachusetts Gen Hosp, Mongan Inst Hlth Policy, Boston, MA 02114 USA
基金
美国国家卫生研究院;
关键词
SOCIAL SUPPORT; RECOMMENDATIONS; OUTCOMES; EXPERIENCES;
D O I
10.1016/j.whi.2017.01.003
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background: Historically, people with disabilities who become parents have confronted discriminatory societal attitudes and public policies. Today, although more women with disabilities are bearing children, little is known about the perceptions of their pregnancies, even among their family members. In addition, little is understood about how family members' attitudes and reactions affect women with physical disabilities around the time of pregnancy. Method: This qualitative study involved interviews with 25 women with physical disabilities from across the United States who had a baby within the past 10 years. Semistructured telephone interviews were conducted. Interviews were audio-recorded, professionally transcribed, and analyzed using an iterative, interpretive process. Findings: Women reported a wide range of physical disabilities. Before, during, and after pregnancy, participants reported experiencing wide-ranging attitudes and reactions from family members concerning their pregnancies. These responses fell into six categories: 1) initial negative reactions, 2) concern about mother's well-being, 3) questioning of parenting capability, 4) negative perceptions of disability, 5) genetic concerns, and 6) excited and supportive. Conclusions: This study sheds light on the attitudes and reactions toward pregnancy that women with physical disabilities experience from family members. Our findings suggest the need for increased social support and family education. Greater availability of peer supports as well as information for women with disabilities considering pregnancy is also needed. (C) 2017 Jacobs Institute of Women's Health. Published by Elsevier Inc.
引用
收藏
页码:345 / 350
页数:6
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