'Well, I knew this already' - explaining personal genetic risk information through narrative meaning-making

被引:9
|
作者
Snell, Karoliina [1 ]
Helen, Ilpo [2 ]
机构
[1] Univ Helsinki, Helsinki Coll Adv Studies, POB 4, FIN-00014 Helsinki, Finland
[2] Univ Eastern Finland, Dept Social Sci, Joensuu, Finland
基金
芬兰科学院;
关键词
genetic risk; cardiovascular disease; focus groups; narratives; lifestyle; biographical disruption; BIOGRAPHICAL DISRUPTION; CHRONIC ILLNESS; HEART-DISEASE; HEALTH; PEOPLE; CHOLESTEROL; REPERTOIRES; EXPERIENCE; TALK; TIME;
D O I
10.1111/1467-9566.13018
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
This article presents results from a Finnish focus group's study conducted among participants of a project called GeneRISK, in which the participants received a personal risk score for having a cardiovascular event based on genetic analysis, lifestyle and laboratory results. In the discussions, interpretations of the genetic risk score and its meaning were incorporated into personal narratives of health and illness. We argue that instead of serving as an explanation for health and illness, which can help guide people's lives and choices, the genetic risk information became an object of explanation. Therefore, the risk information did not create new conceptions of personal risk, nor did it generate enough power to push people to change their lifestyles. Instead, the risk information was used to strengthen the existing impression of personal risk and the narrative of personal health and illness.
引用
收藏
页码:496 / 509
页数:14
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