'Well, I knew this already' - explaining personal genetic risk information through narrative meaning-making
被引:9
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作者:
Snell, Karoliina
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机构:
Univ Helsinki, Helsinki Coll Adv Studies, POB 4, FIN-00014 Helsinki, FinlandUniv Helsinki, Helsinki Coll Adv Studies, POB 4, FIN-00014 Helsinki, Finland
Snell, Karoliina
[1
]
Helen, Ilpo
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机构:
Univ Eastern Finland, Dept Social Sci, Joensuu, FinlandUniv Helsinki, Helsinki Coll Adv Studies, POB 4, FIN-00014 Helsinki, Finland
Helen, Ilpo
[2
]
机构:
[1] Univ Helsinki, Helsinki Coll Adv Studies, POB 4, FIN-00014 Helsinki, Finland
[2] Univ Eastern Finland, Dept Social Sci, Joensuu, Finland
This article presents results from a Finnish focus group's study conducted among participants of a project called GeneRISK, in which the participants received a personal risk score for having a cardiovascular event based on genetic analysis, lifestyle and laboratory results. In the discussions, interpretations of the genetic risk score and its meaning were incorporated into personal narratives of health and illness. We argue that instead of serving as an explanation for health and illness, which can help guide people's lives and choices, the genetic risk information became an object of explanation. Therefore, the risk information did not create new conceptions of personal risk, nor did it generate enough power to push people to change their lifestyles. Instead, the risk information was used to strengthen the existing impression of personal risk and the narrative of personal health and illness.
机构:
Univ North Carolina Chapel Hill, Dept Phys Med & Rehabil, Chapel Hill, NC USA
NHLBI, NIH, 6701 Rockledge Dr, Bethesda, MD 20817 USAUniv North Carolina Chapel Hill, Dept Phys Med & Rehabil, Chapel Hill, NC USA
Campo, Rebecca A.
Wu, Lisa M.
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Northwestern Univ, Feinberg Sch Med, Dept Med Social Sci, Chicago, IL 60611 USAUniv North Carolina Chapel Hill, Dept Phys Med & Rehabil, Chapel Hill, NC USA
Wu, Lisa M.
Austin, Jane
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机构:
William Paterson Univ, Dept Psychol, Wayne, NJ USAUniv North Carolina Chapel Hill, Dept Phys Med & Rehabil, Chapel Hill, NC USA
Austin, Jane
Valdimarsdottir, Heiddis
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机构:
Reykjavik Univ, Dept Psychol, Reykjavik, IcelandUniv North Carolina Chapel Hill, Dept Phys Med & Rehabil, Chapel Hill, NC USA
Valdimarsdottir, Heiddis
Rini, Christine
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机构:
Hackensack Univ, Med Ctr, Canc Prevent & Control, John Theurer Canc Ctr, Hackensack, NJ USAUniv North Carolina Chapel Hill, Dept Phys Med & Rehabil, Chapel Hill, NC USA