Infrastructure to support learning health systems: are we there yet? Innovative solutions and lessons learned from American Recovery and Reinvestment Act CER investments

被引:3
|
作者
Holve, Erin [1 ,2 ]
Segal, Courtney [1 ,2 ]
机构
[1] Res & Educ Hlth Serv Res, Washington, DC 20001 USA
[2] AcademyHealth, Washington, DC USA
基金
美国医疗保健研究与质量局;
关键词
analytic methods governance; big health data; comparative effectiveness research; data infrastructure; health information technology; learning health system; patient-centered outcomes research; quality improvement;
D O I
10.2217/cer.14.72
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
The 11 big health data networks participating in the AcademyHealth Electronic Data Methods Forum represent cutting-edge efforts to harness the power of big health data for research and quality improvement. This paper is a comparative case study based on site visits conducted with a subset of these large infrastructure grants funded through the Recovery Act, in which four key issues emerge that can inform the evolution of learning health systems, including the importance of acknowledging the challenges of scaling specialized expertise needed to manage and run CER networks; the delicate balance between privacy protections and the utility of distributed networks; emerging community engagement strategies; and the complexities of developing a robust business model for multi-use networks.
引用
收藏
页码:635 / 645
页数:11
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