Protecting the privacy of individual general practice patient electronic records for geospatial epidemiology research

被引:19
|
作者
Mazumdar, Soumya [1 ]
Konings, Paul [1 ]
Hewett, Michael [1 ]
Bagheri, Nasser [1 ]
McRae, Ian [1 ]
Del Fante, Peter [2 ]
机构
[1] Australian Natl Univ, Australian Primary Healthcare Res Inst, Canberra, ACT 0200, Australia
[2] Healthfirst Network, Woodville, SA, Australia
关键词
privacy; Geographical Information Systems (GIS); geospatial; general practice (GP) data collection; Australia; de-identified data; confidentiality; HEALTH DATA; CONSENT; LINKAGE; SYSTEM;
D O I
10.1111/1753-6405.12262
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background: General practitioner (GP) practices in Australia are increasingly storing patient information in electronic databases. These practice databases can be accessed by clinical audit software to generate reports that inform clinical or population health decision making and public health surveillance. Many audit software applications also have the capacity to generate de-identified patient unit record data. However, the de-identified nature of the extracted data means that these records often lack geographic information. Without spatial references, it is impossible to build maps reflecting the spatial distribution of patients with particular conditions and needs. Links to socioeconomic, demographic, environmental or other geographically based information are also not possible. In some cases, relatively coarse geographies such as postcode are available, but these are of limited use and researchers cannot undertake precision spatial analyses such as calculating travel times. Methods: We describe a method that allows researchers to implement meaningful mapping and spatial epidemiological analyses of practice level patient data while preserving privacy. Results: This solution has been piloted in a diabetes risk research project in the patient population of a practice in Adelaide. Conclusions and implications: The method offers researchers a powerful means of analysing geographic clinic data in a privacy-protected manner.
引用
收藏
页码:548 / 552
页数:5
相关论文
共 50 条
  • [1] Electronic patient records in general practice - Reply
    Hassey, A
    Gerrett, D
    Wilson, A
    [J]. BRITISH MEDICAL JOURNAL, 2001, 323 (7322): : 1185 - 1185
  • [2] Use of electronic patient records for research: views of patients and staff in general practice
    Stevenson, Fiona
    Lloyd, Nigel
    Harrington, Louise
    Wallace, Paul
    [J]. FAMILY PRACTICE, 2013, 30 (02) : 227 - 232
  • [3] Electronic patient records in general practice - Methods of evaluation of electronic patient records entail dangers
    Newcombe, RG
    Altman, DG
    Bryant, TN
    [J]. BRITISH MEDICAL JOURNAL, 2001, 323 (7322): : 1184 - 1185
  • [4] A survey of validity and utility of electronic patient records in a general practice
    Hassey, A
    Gerrett, D
    Wilson, A
    [J]. BRITISH MEDICAL JOURNAL, 2001, 322 (7299): : 1401 - 1405
  • [5] Protecting research as well as patient privacy
    Skolnick, AA
    [J]. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 1998, 279 (04): : 258 - 258
  • [6] Electronic patient records in general practice - Published methods of measuring the accuracy of electronic records do exist
    Brown, PJB
    [J]. BMJ-BRITISH MEDICAL JOURNAL, 2001, 323 (7322): : 1184 - 1184
  • [7] Towards consensus for best practice: the use of patient records for research in general practice
    Mathers, Nigel
    Perrin, Nicola M. R.
    Watt, Graham C. M.
    [J]. BRITISH JOURNAL OF GENERAL PRACTICE, 2008, 58 (556): : 814 - 815
  • [8] Electronic Medical Records, HIPAA, and Patient Privacy
    Li, Jingquan
    Shaw, Michael J.
    [J]. INTERNATIONAL JOURNAL OF INFORMATION SECURITY AND PRIVACY, 2008, 2 (03) : 45 - 54
  • [9] Protecting Privacy in Health Research: The Limits of Individual Choice
    Cate, Fred H.
    [J]. CALIFORNIA LAW REVIEW, 2010, 98 (06) : 1765 - 1803
  • [10] Enabling research in general practice Increasing functionality of electronic medical records
    Young, Jacqueline
    Eley, Diann
    Fahey, Paul
    Patterson, Elizabeth
    Hegney, Desley
    [J]. AUSTRALIAN FAMILY PHYSICIAN, 2010, 39 (07) : 506 - 509