Patient engagement in melanoma research: from bench to bedside

被引:1
|
作者
Tivey, Ann [1 ,4 ]
Huddar, Prerana [1 ]
Shotton, Rohan [1 ]
Cheese, Imogen [2 ]
Daniels, Susanna [3 ]
Lorigan, Paul [1 ,4 ]
J Lee, Rebecca [1 ,4 ]
机构
[1] Christie NHS Fdn Trust, Wilmslow Rd, Manchester M20 4BX, Lancs, England
[2] Willow Bank, Melanoma Patient Conf, Staunton GL19 3RF, Glos, England
[3] Melanoma Focus, Queen Anne House,Gonville Pl, Cambridge CB1 1ND, England
[4] Univ Manchester, Div Canc Sci, Oxford Rd, Manchester M13 9PL, Lancs, England
关键词
advocacy; clinical trial; melanoma; patient engagement; PPI; research; risk; QUALITY-OF-LIFE; ADJUVANT IPILIMUMAB; DECISION-MAKING; COMPLETE RESECTION; CLINICAL-TRIALS; DOUBLE-BLIND; EORTC; 18071; CANCER; RISK; COMMUNICATION;
D O I
10.2217/fon-2020-1165
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Advances in research have transformed the management of melanoma in the past decade. In parallel, patient advocacy has gained traction, and funders are increasingly prioritizing patient and public involvement. Here we discuss the ways in which patients and the public can be engaged in different stages of the research process, from developing, prioritizing and refining the research question to preclinical studies and clinical trials, then finally to ongoing research in the clinic. We discuss the challenges and opportunities that exist at each stage in order to ensure that a representative population of patients and the public contribute to melanoma research both now and in the future.
引用
收藏
页码:3705 / 3716
页数:12
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