Perceived protectiveness of research safeguards and influences on willingness to participate in research: A novel MTurk pilot study

被引：0

作者：

Kim, Jane Paik ^{[1
]}

Ryan, Katie ^{[1
]}

Tsungmey, Tenzin ^{[1
]}

Kasun, Max ^{[1
]}

Roberts, Willa A. ^{[2
]}

Dunn, Laura B. ^{[2
]}

Roberts, Laura Weiss ^{[2
]}

机构：

[1] Stanford Univ, Dept Psychiat & Behav Sci, Sch Med, 1520 Page Mill Rd, Palo Alto, CA 94304 USA

[2] Stanford Univ, Dept Psychiat & Behav Sci, Sch Med, 401 Quarry Rd, Stanford, CA 94305 USA

来源：

JOURNAL OF PSYCHIATRIC RESEARCH | 2021年 / 138卷

关键词：

Research safeguards; Research participation; Willingness; Perspectives; Mood disorders; MECHANICAL TURK; DECISION-MAKERS; SCHIZOPHRENIA; MISTRUST; CONSENT; VIEWS; INDIVIDUALS; VOLUNTEERS; TUSKEGEE; PATIENT;

D O I：

10.1016/j.jpsychires.2021.04.005

中图分类号：

R749 [精神病学];

学科分类号：

100205 ;

摘要：

Little is known about how individuals with mood disorders view the protectiveness of research safeguards, and whether their views affect their willingness to participate in psychiatric research. We conducted an online survey with 80 individuals (self-reported mood disorder [n = 25], self-reported good health [n = 55]) recruited via MTurk. We assessed respondents' perceptions of the protectiveness of five common research safeguards, as well as their willingness to participate in research that incorporates each safeguard. Perceived protectiveness was strongly related to willingness to participate in research for four of the safeguards. Our findings add to a limited literature on the motivations and perspectives of key stakeholders in psychiatric research.

引用

页码：200 / 206

页数：7

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[1] A PILOT INVESTIGATION OF VARIABLES ASSOCIATED WITH PATIENT WILLINGNESS TO PARTICIPATE IN PSYCHOSOCIAL RESEARCH
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[J]. REHABILITATION PSYCHOLOGY, 1989, 34 (03) : 185 - 189
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Shofer, F.
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