Engaging with EPIO, a digital pain self-management program: a qualitative study

被引:8
|
作者
Bostrom, Katrine [1 ,2 ]
Varsi, Cecilie [1 ,3 ]
Eide, Hilde [1 ,4 ]
Borosund, Elin [1 ]
Kristjansdottir, Olof B. [1 ,5 ]
Schreurs, Karlein M. G. [6 ]
Waxenberg, Lori B. [7 ]
Weiss, Karen E. [8 ]
Morrison, Eleshia J. [9 ]
Nordang, Elise Flakk [1 ]
Stubhaug, Audun [2 ,10 ,11 ]
Nes, Lise Solberg [1 ,2 ,9 ]
机构
[1] Oslo Univ Hosp, Dept Digital Hlth Res, Div Med, Oslo, Norway
[2] Univ Oslo, Fac Med, Inst Clin Med, Oslo, Norway
[3] Univ South Eastern Norway, Fac Hlth & Social Sci, Drammen, Norway
[4] Univ South Eastern Norway, Fac Hlth & Social Sci, Ctr Hlth & Technol, Drammen, Norway
[5] Oslo Univ Hosp, Norwegian Natl Advisory Unit Learning & Mastery H, Oslo, Norway
[6] Univ Twente, Dept Psychol Hlth & Technol, Enschede, Netherlands
[7] Univ Florida, Dept Clin & Hlth Psychol, Gainesville, FL USA
[8] Univ Washington, Dept Anesthesiol & Pain Med, Sch Med, Seattle, WA USA
[9] Mayo Clin, Dept Psychiat & Psychol, Coll Med & Sci, Rochester, MN 55905 USA
[10] Oslo Univ Hosp, Dept Pain Management & Res, Oslo, Norway
[11] Oslo Univ Hosp, Reg Advisory Unit Pain, Oslo, Norway
关键词
Digital; eHealth; Application (app); Chronic pain; Self-management; Engagement; EPIO; Qualitative study; INTERVENTIONS; FIBROMYALGIA; ENGAGEMENT; CARE;
D O I
10.1186/s12913-022-07963-x
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Chronic pain conditions entail significant personal and societal burdens and improved outreach of evidence-based pain self-management programs are needed. Digital cognitive-behavioral self-management interventions have shown promise. However, evidence is still scarce and several challenges with such interventions for chronic pain exist. Exploring patients' experiences and engagement with digital interventions may be an essential step towards developing meaningful digital self-management interventions for those living with chronic pain. Objectives: This study aimed to gain insight into the experiences of people with chronic pain when engaging with EPIO, an application (app)-based cognitive-behavioral pain self-management intervention program. Methods: Participants (N= 50) living with chronic pain received access to the EPIO intervention in a feasibility pilotstudy for 3 months. During this time, all participants received a follow-up phone call at 2-3 weeks, and a subsample (n = 15) also participated in individual semi-structured interviews after 3 months. A qualitative design was used and thematic analysis was employed aiming to capture participants' experiences when engaging with the EPIO intervention program. Results: Findings identifying program-related experiences and engagement were organized into three main topics, each with three sub-themes: (1) Engaging with EPIC; motivation to learn, fostering joy and enthusiasm, and helpful reminders and personalization, (2) Coping with pain in everyday life; awareness, practice and using EPIO in everyday life, and (3) The value of engaging with the EPIO program; EPIO - a friend, making peace with the presence of pain, and fostering communication and social support. Conclusions: This qualitative study explored participants' experiences and engagement with EPIO, a digital self-management intervention program for people living with chronic pain. Findings identified valued aspects related to motivation for engagement, and showed how such a program may be incorporated into daily life, and encourage a sense of acceptance, social support and relatedness. The findings highlight vital components for facilitating digital program engagement and use in support of self-management for people living with chronic pain.
引用
收藏
页数:15
相关论文
共 50 条
  • [1] Engaging with EPIO, a digital pain self-management program: a qualitative study
    Katrine Bostrøm
    Cecilie Varsi
    Hilde Eide
    Elin Børøsund
    Ólöf B. Kristjansdottir
    Karlein M. G. Schreurs
    Lori B. Waxenberg
    Karen E. Weiss
    Eleshia J. Morrison
    Elise Flakk Nordang
    Audun Stubhaug
    Lise Solberg Nes
    BMC Health Services Research, 22
  • [2] Changes in cognition, coping, pain and emotions after 12-months access to the digital self-management program EPIO
    Strand, Elin Bolle
    Varsi, Cecilie
    Borosund, Elin
    Eide, Hilde
    Schreurs, Karlein M. G.
    Waxenberg, Lori B.
    Weiss, Karen E.
    Morrison, Eleshia J.
    Stole, Hanne Stavenes
    Kristjansdottir, Olof Birna
    Stubhaug, Audun
    Solberg Nes, Lise
    FRONTIERS IN PSYCHOLOGY, 2025, 16
  • [3] SHORT-TERM EFFICACY FINDINGS FROM A RANDOMIZED CONTROLLED TRIAL WITH EPIO - A DIGITAL PAIN SELF-MANAGEMENT PROGRAM
    Bostrom, Katrine
    Borosund, Elin
    Eide, Hilde
    Varsi, Cecilie
    Kristjansdottir, Olof B.
    Schreurs, Karlein M. G.
    Waxenberg, Lori B.
    Weiss, Karen E.
    Morrison, Eleshia
    Stole, Hanne Stavenes
    Stubhaug, Audun
    Nes, Lise Solberg
    ANNALS OF BEHAVIORAL MEDICINE, 2022, 56 (SUPP 1) : S198 - S198
  • [4] Living well with chronic pain: a 12-month randomized controlled trial revealing impact from the digital pain self-management program EPIO
    Nes, Lise Solberg
    Borosund, Elin
    Varsi, Cecilie
    Eide, Hilde
    Waxenberg, Lori B.
    Weiss, Karen E.
    Morrison, Eleshia J.
    Stole, Hanne Stavenes
    Kristjansdottir, Oloef B.
    Bostrom, Katrine
    Strand, Elin Bolle
    Hagen, Milada Cvancarova Smastuen
    Stubhaug, Audun
    Schreurs, Karlein M. G.
    PAIN REPORTS, 2024, 9 (04)
  • [5] Short-Term Findings From Testing EPIO, a Digital Self-Management Program for People Living With Chronic Pain: Randomized Controlled Trial
    Bostrom, Katrine
    Borosund, Elin
    Eide, Hilde
    Varsi, Cecilie
    Kristjansdottir, oloef Birna
    Schreurs, Karlein M. G.
    Waxenberg, Lori B.
    Weiss, Karen E.
    Morrison, Eleshia J.
    Stole, Hanne Stavenes
    Smastuen, Milada Cvancarova
    Stubhaug, Audun
    Nes, Lise Solberg
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2023, 25
  • [6] Pain cognitions and impact of low back pain after participation in a self-management program: a qualitative study
    Joern, Lise
    Kongsted, Alice
    Thomassen, Line
    Hartvigsen, Jan
    Ravn, Susanne
    CHIROPRACTIC & MANUAL THERAPIES, 2022, 30 (01)
  • [7] Pain cognitions and impact of low back pain after participation in a self-management program: a qualitative study
    Lise Joern
    Alice Kongsted
    Line Thomassen
    Jan Hartvigsen
    Susanne Ravn
    Chiropractic & Manual Therapies, 30
  • [8] "Focus on the Good" - Participant Perspectives after Engaging in an Online Pain Self-Management Program
    Wilson, Marian
    Shaw, Michele R.
    PROCEEDINGS OF THE 50TH ANNUAL HAWAII INTERNATIONAL CONFERENCE ON SYSTEM SCIENCES, 2017, : 3367 - 3375
  • [9] Enhancing self-management in chronic pain: Reflections on a qualitative study
    Toledo, John Patrick C.
    CANADIAN JOURNAL OF PAIN-REVUE CANADIENNE DE LA DOULEUR, 2025, 9 (01):
  • [10] Pain Self-management Strategies in Patients With Cancer A Qualitative Study
    Orujlu, Samira
    Hassankhani, Hadi
    Rahmani, Azad
    Sanaat, Zohreh
    Dadashzadeh, Abbas
    Allahbakhshian, Atefeh
    HOLISTIC NURSING PRACTICE, 2023, 37 (02) : 90 - 97