Mother knows best: The caregiver's perspective on clinical trials for sickle cell disease highlights the challenges of providing care in Africa

被引：1
|
作者：
Tubman, Venee N. [1 ,2 ]
机构：
[1] Baylor Coll Med, Dept Pediat, Houston, TX 77030 USA
[2] Texas Childrens Canc & Hematol Ctr, Houston, TX USA
来源：
PEDIATRIC BLOOD & CANCER | 2020年 / 67卷 / 02期
关键词：
HYDROXYUREA; CHILDREN;
D O I：
10.1002/pbc.28054
中图分类号：
R73 [肿瘤学];
学科分类号：
100214 ;
摘要：
[No abstract available]
引用
收藏
页数：2
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    Carter-Wicker, Kitty
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    Gibson, Robert
    Kutlar, Abdullah
    Logan, Ayaba
    Kabongo, Mbuyi Madeleine
    Adamkiewicz, Tom
    [J]. BLOOD, 2015, 126 (23)
  • [2] A Caregiver's Perspective: Internist, Active Duty Service Member, and Mother of a Child Living With Sickle Cell Disease
    McGann, Stephany
    [J]. ANNALS OF EMERGENCY MEDICINE, 2020, 76 (03) : S78 - S79
  • [3] Measuring success: utility of biomarkers in sickle cell disease clinical trials and care
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    Novelli, Enrico M.
    [J]. HEMATOLOGY-AMERICAN SOCIETY OF HEMATOLOGY EDUCATION PROGRAM, 2018, : 482 - 492
  • [4] Measurement of Sickle Cell Disease Symptoms from the Patient Perspective: Considerations for Clinical Trials
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    Chaston, Emily
    Roeder, Adam
    Treadwell, Marsha J.
    Reasner, David
    [J]. BLOOD, 2018, 132
  • [5] Digital Therapeutics for MCI and Alzheimer’s disease: A Regulatory Perspective — Highlights From The Clinical Trials on Alzheimer’s Disease conference (CTAD)
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