Disclosure of Genetic Risk: When Genetic Relatives Are Not Family Members

被引:1
|
作者
Gabriel, Jazmine L. [1 ]
Jankowski, Jane [2 ]
机构
[1] Albany Med Coll, Albany, NY 12208 USA
[2] Cleveland Clin, Cleveland, OH 44106 USA
来源
AMERICAN JOURNAL OF BIOETHICS | 2018年 / 18卷 / 07期
关键词
LI-FRAUMENI SYNDROME;
D O I
10.1080/15265161.2018.1478037
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
引用
收藏
页码:77 / 79
页数:3
相关论文
共 50 条
  • [1] Non-disclosure of genetic risk information to family members
    Kerzin-Storrar, L
    Clarke, AJ
    Richards, M
    Halliday, J
    Young, MA
    [J]. JOURNAL OF MEDICAL GENETICS, 2002, 39 : S39 - S39
  • [2] Preferences of people with inherited genetic conditions and family members in Portugal toward informing at-risk relatives of genetic risk
    Pinto, Mara
    Freixo, Joao Parente
    Julio, Filipa
    Milagre, Tamara Hussong
    Sousa, Luis
    Sousa, Liliana
    Mendes, Alvaro
    [J]. EUROPEAN JOURNAL OF HUMAN GENETICS, 2024, 32 : 16 - 17
  • [3] Communicating genetic risk to family members
    Daly, MB
    Barsevick, AM
    Montgomery, SV
    Bingler, R
    Malick, J
    Spoltore, J
    Weil, SC
    [J]. BREAST CANCER RESEARCH AND TREATMENT, 2003, 82 : S76 - S76
  • [4] Lay beliefs and the disclosure of personal genetic information to family members
    Clarke, A
    Featherstone, K
    Atkinson, PA
    [J]. JOURNAL OF MEDICAL GENETICS, 2001, 38 : S42 - S42
  • [5] Postmortem disclosure of genetic information to family members: active or passive?
    Boers, Sarah N.
    van Delden, Johannes J. M.
    Knoers, Nine V.
    Bredenoord, Annelien L.
    [J]. TRENDS IN MOLECULAR MEDICINE, 2015, 21 (03) : 148 - 153
  • [6] Disclosure of genetic risk to family members: A qualitative study on healthcare professionals' perceived roles and responsibilities
    Mendes, Alvaro
    Paneque, Milena
    Sequeiros, Jorge
    [J]. EUROPEAN JOURNAL OF MEDICAL GENETICS, 2024, 68
  • [7] Disclosure of genetic information to family members: a systematic review of normative documents
    Phillips, Amicia
    Borry, Pascal
    Van Hoyweghen, Ine
    Vears, Danya F.
    [J]. GENETICS IN MEDICINE, 2021, 23 (11) : 2038 - 2046
  • [8] Disclosure of genetic information to relatives: balancing confidentiality and relatives' interests
    Lucassen, Anneke
    Gilbar, Roy
    [J]. JOURNAL OF MEDICAL GENETICS, 2018, 55 (04) : 285 - 286
  • [9] CHALLENGES TO GENETIC PRIVACY The case of disclosure of genetic information to a patient's genetic relatives
    Bogdanoski, Tony
    [J]. ALTERNATIVE LAW JOURNAL, 2008, 33 (03) : 165 - 168
  • [10] Information of family members with an increased risk for a genetic predisposition
    Gordijn, B
    [J]. DEUTSCHE MEDIZINISCHE WOCHENSCHRIFT, 2006, 131 (11) : 573 - 576