Long-term follow-up of dysphagia in adult patients with Duchenne muscular dystrophy

被引：4
|
作者：
Yamada, Yuka [1 ,2 ]
Kawakami, Michiyuki [1 ]
Wada, Ayako [1 ,2 ]
Fukui, Shogo [1 ]
Haruyama, Koshiro [2 ]
Otsuka, Tomoyoshi [1 ,2 ]
Liu, Meigen [1 ]
机构：
[1] Keio Univ, Sch Med, Dept Rehabil Med, Tokyo, Japan
[2] Natl Higashisaitama Hosp, Dept Rehabil Med, Hasuda, Saitama, Japan
来源：
EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY | 2018年 / 22卷 / 05期
关键词：
Swallowing; Neuromuscular disease; Prognosis; Predictor; PERCUTANEOUS ENDOSCOPIC GASTROSTOMY; NEUROMUSCULAR DISEASE; SAFETY;
D O I：
10.1016/j.ejpn.2018.06.004
中图分类号：
R74 [神经病学与精神病学];
学科分类号：
摘要：
Background: Dysphagia is a well-known dysfunction in patients with Duchenne muscular dystrophy (DMD), but long-term follow-up of this symptom has not been reported. The aims of this study were to investigate swallowing status, prospectively study the prognosis of swallowing function in adult patients with DMD over the course of 6 years, and to identify clinical factors related to prognosis. Methods: Participants were 81 patients with DMD. Swallowing status was assessed using the Neuromuscular Disease Swallowing Status Scale (NdSSS) every 2 years for 6 years. Results: NdSSS was related to age, functional ability assessed using the Swinyard staging and the status of ventilator dependence. Median NdSSS changed from 6 to 4, 4 and 3 over the 4 time points. Number of patients with tube feeding increased by 5-10% every 2 years. Initial NdSSS was a predictor of future swallowing status. Conclusion: Swallowing status declined over time in patients with adult DMD, with initial NdSSS as a predictor. (C) 2018 European Paediatric Neurology Society. Published by Elsevier Ltd. All rights reserved.
引用
收藏
页码：786 / 790
页数：5
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