Use of the Word "Crisis" in Sickle Cell Disease: The Language of Sickle Cell

被引:0
|
作者
Savitt, Todd L. [1 ]
Smith, Wally R. [2 ]
Haywood, Carlton, Jr. [3 ]
Creary, Melissa S. [4 ]
机构
[1] E Carolina Univ, Brody Sch Med, Dept Bioeth & Interdisciplinary Studies, Greenville, NC 27834 USA
[2] Virginia Commonwealth Univ, Dept Med, Richmond, VA 23298 USA
[3] Johns Hopkins Berman Inst Bioeth, Baltimore, MD USA
[4] Ctr Dis Control & Prevent, Natl Ctr Birth Defects & Dev Disabil, Div Blood Disorders, Atlanta, GA USA
关键词
sickle cell disease; crisis; history; pain; RED-BLOOD-CELLS; ABDOMINAL CRISES; HOME MANAGEMENT; PAINFUL CRISIS; ANEMIA; CHILDREN; ADOLESCENTS; ADULTS; VASOOCCLUSION; SPLENECTOMY;
D O I
暂无
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Language matters. The Wards used to tiama,P,P1 desTIPP, disease phenomena are diefieCtien'af society. The authors the use at the Ward "crisis"i in SCD !-frcirro sociologic0),,,h1kION.01,:tePliPal:PP 1 patient PerSpeCtivei.-itieterrp,erisis7TOeComeosseciatedwithSickle cel disease in thernia,i9Os,'inore "than ii-deddeafterithe first description of the disease had been Cifiblished.TheTerm hod been used tar centuries in conlunction with fever and as a signifier of severe pain in certain diseases during the nineteenth century. The application of Jerre to thtk6w4p,,,,'disease in t`tiel92Cis'reirlted tram 1514,isiCkins; opservations. of their Patients :Lirgentsitt.;aiiens!ThouahcOMMonly used by tiealth'careorbyrdersand patients today "crisis" not be the appropriate term for sickle cell patients suffering se-vere pain. because people endure differinglemounts, of pain beforestating-they,are crisis." The can be undertreatment, of the Pain Or iniitrustjpetween`PhYsiCians and patient's about Use of 'strong (nbrcatiey Pain-relievers:Some patients believe the term is useful in communicating the severity P Of their pain and the urgency of their need - e.se for relief tram it, especially seeking at hospitaremergency, departments. while others believe "crisis" does not accurately'reflect-theii 4 - severity or seriousness of their situation.
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页码:23 / 30
页数:8
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