The effects of informal carers' characteristics on their information needs: The information needs state approach

被引:7
|
作者
Alzougool, Basil [1 ]
Chang, Shanton [2 ]
Gray, Kathleen [3 ]
机构
[1] Arab Open Univ, Kuwait Branch, Business Studies Program, Al Ardhiyah, Kuwait
[2] Univ Melbourne, Dept Comp & Informat Syst, Melbourne, Vic, Australia
[3] Univ Melbourne, Hlth & Biomed Informat Ctr, Melbourne, Vic, Australia
来源
INFORMATICS FOR HEALTH & SOCIAL CARE | 2017年 / 42卷 / 03期
关键词
Health information systems; informal carers; information needs and behavior; CANCER-PATIENTS; HEALTH-CARE; INTERNET; PARENTS; SEEKING; PROVISION; CHILDREN; SUPPORT;
D O I
10.1080/17538157.2016.1221409
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: There has been little research that provides a comprehensive account of the nature and aspects of information needs of informal carers. The authors have previously developed and validated a framework that accounts for major underlying states of information need. This paper aims to apply this framework to explore whether there are common demographic and socioeconomic characteristics that affect the information needs states of carers. A questionnaire about the information needs states was completed by 198 carers above 18 years old. We use statistical methods to look for similarities and differences in respondents' information needs states, in terms of the demographic and socioeconomic variables. At least one information needs state varies among carers, in terms of seven demographic and socioeconomic variables: the age of the patient(s) that they are caring for; the condition(s) of the patient(s) that they are caring for; the number of patients that they are caring for; their length of time as a carer; their gender; the country that they live in; and the population of the area that they live in. The findings demonstrate the utility of the information needs state framework. We outline some practical implications of the framework.
引用
收藏
页码:261 / 273
页数:13
相关论文
共 50 条
  • [1] A TAXONOMY OF INFORMATION NEEDS OF INFORMAL CARERS An Empirical Investigation
    Alzougool, Basil
    Chang, Shanton
    Gray, Kathleen
    HEALTHINF 2009: PROCEEDINGS OF THE INTERNATIONAL CONFERENCE ON HEALTH INFORMATICS, 2009, : 161 - +
  • [2] Travel information needs of informal carers of people living with dementia
    Tomej, Kristof
    Hansen, Marcus
    Blichfeldt, Bodil Stilling
    CURRENT ISSUES IN TOURISM, 2024, 27 (16) : 2618 - 2630
  • [3] Information needs of the informal carers of women treated for breast cancer
    Beaver, Kinta
    Witham, Gary
    EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2007, 11 (01) : 16 - 25
  • [4] THE EXTENT, CHARACTERISTICS AND NEEDS OF INFORMAL CARERS IN THE COMMUNITY
    KALUCY, E
    BAUM, F
    COOKE, R
    COMMUNITY HEALTH STUDIES, 1989, 13 (03): : 357 - 358
  • [5] A framework for understanding user requirements for an information service: Defining the needs of informal carers
    Hepworth, M
    JOURNAL OF THE AMERICAN SOCIETY FOR INFORMATION SCIENCE AND TECHNOLOGY, 2004, 55 (08): : 695 - 708
  • [6] A qualitative analysis of the information needs of informal carers of terminally ill cancer patients
    Rose, KE
    JOURNAL OF CLINICAL NURSING, 1999, 8 (01) : 81 - 88
  • [7] The information needs of carers of adults diagnosed with epilepsy
    Kendall, S
    Thompson, D
    Couldridge, L
    SEIZURE-EUROPEAN JOURNAL OF EPILEPSY, 2004, 13 (07): : 499 - 508
  • [8] WHAT INFORMATION NEEDS DO CARERS HAVE - ARE WE MEETING THESE NEEDS
    JOHNSON, K
    EARDLEY, A
    SCOTT, I
    WOODMAN, C
    PSYCHO-ONCOLOGY, 1995, 4 (02) : 90 - 90
  • [9] Addressing the information needs of informal carers in Malawi: a healthcare intervention based on co-creation
    Zamani, Efpraxia D.
    Sbaffi, Laura
    Kalua, Khumbo
    JOURNAL OF DOCUMENTATION, 2024, 80 (01) : 131 - 157
  • [10] Information needs and information-seeking preferences of ALS patients and their carers
    Abdulla, Susanne
    Vielhaber, Stefan
    Machts, Judith
    Heinze, Hans-Jochen
    Dengler, Reinhard
    Petri, Susanne
    AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 2014, 15 (7-8) : 505 - 512