Young Adult Palliative Care: Challenges and Opportunities

被引:38
|
作者
Clark, Jennifer K. [1 ,2 ]
Fasciano, Karen [3 ]
机构
[1] Univ Oklahoma, Dept Internal Med, Sch Community Med Tulsa, OU Ctr Palliat Care, Tulsa, OK 74135 USA
[2] Univ Oklahoma, Dept Pediat, Sch Community Med Tulsa, OU Ctr Palliat Care, Tulsa, OK 74135 USA
[3] Dana Farber Canc Inst, Dept Psychosocial Oncol & Palliat Care, Boston, MA 02115 USA
来源
关键词
young adult; emerging adult; adolescents and young adults; palliative care; hospice; end-of-life care; OF-LIFE CARE; CYSTIC-FIBROSIS; DYING ADOLESCENT; SELF-MANAGEMENT; CANCER-PATIENTS; CHRONIC ILLNESS; TRANSITION; CHILDREN; DISEASE; PEOPLE;
D O I
10.1177/1049909113510394
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Young adulthood is a time of immense growth and possibilities. As a result, it is also a time when serious illness can have profound effects. This review examines the current data pertinent to young adult palliative care and discusses the challenges and opportunities where palliative medicine can enhance the care provided to this growing and vulnerable population. From the data, 2 primary themes emerged (1) ongoing young adult development not only generates unique biologic disease burdens and clinical treatment options but also requires frequent assessment and promotion and (2) binary health care systems often leave young adults without access to developmentally appropriate health care. Given its interdisciplinary approach, palliative care is uniquely poised to address the challenges known to caring for the seriously ill young adult.
引用
收藏
页码:101 / 111
页数:11
相关论文
共 50 条
  • [1] Young adult diabetes care in the west of Ireland: challenges and opportunities
    Casey, R.
    Hara, M. O.
    Cunningham, A.
    Bell, M.
    Burke, H.
    Wall, D.
    Geoghegan, R.
    Hynes, L.
    McGuire, B.
    Gately, M.
    Dinneen, S. F.
    DIABETOLOGIA, 2012, 55 : S410 - S411
  • [2] Challenges and opportunities in the care of survivors of adolescent and young adult cancers
    Fidler, Miranda M.
    Frobisher, Clare
    Hawkins, Michael M.
    Nathan, Paul C.
    PEDIATRIC BLOOD & CANCER, 2019, 66 (06)
  • [3] Palliative Care in Egypt: Challenges and Opportunities
    Hablas, Ahmed
    JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY, 2011, 33 : S52 - S53
  • [4] Digitalization in palliative care - opportunities and challenges
    Busse, Theresa Sophie
    Burner-Fritsch, Isabel
    Deckers, Merlin
    Muente, Catharina
    Muehlensiepen, Felix
    Peuckmann-Post, Vera
    Giehl, Chantal
    ZEITSCHRIFT FUR PALLIATIVMEDIZIN, 2023, 24 (05): : 226 - 228
  • [5] Opportunities and Challenges of Palliative Care for Prisoners
    Heyl, Lia
    Stiel, Stephanie
    ZEITSCHRIFT FUR PALLIATIVMEDIZIN, 2024,
  • [6] PALLIATIVE CARE IN EGYPT: CHALLENGES AND OPPORTUNITIES
    Hablas, Mohamed
    BREAST, 2017, 36 : S68 - S69
  • [7] RHEUMATOLOGY ADOLESCENT AND YOUNG ADULT CARE: REAL WORLD CHALLENGES AND OPPORTUNITIES
    Malaiya, R.
    Steer, S.
    Das, S.
    Mathews, C.
    Davies, U.
    Godbold, E.
    Lamb, S.
    Vale, S.
    Goncalves, V.
    Sumbwanyambe, M.
    Sumbwanyambe, M.
    Thurlbeck, S.
    Wilkinson, N.
    ANNALS OF THE RHEUMATIC DISEASES, 2018, 77 : 525 - 526
  • [8] Existential thought in palliative care: Opportunities and challenges
    Lavoie, Mireille
    JOURNAL OF PALLIATIVE CARE, 2007, 23 (03) : 196 - 196
  • [9] Palliative Care Physical Therapy: The Challenges and the Opportunities
    Patton, Brianne E.
    Wilson, Christopher M.
    REHABILITATION ONCOLOGY, 2021, 39 (03) : E70 - E72
  • [10] Primary palliative care research: opportunities and challenges
    Barclay, Stephen
    Moran, Emily
    Boase, Sue
    Johnson, Margaret
    Lovick, Roberta
    Graffy, Jonathan
    White, Patrick L.
    Deboys, Brenda
    Harrison, Katy
    Swash, Brooke
    BMJ SUPPORTIVE & PALLIATIVE CARE, 2019, 9 (04) : 468 - 472