Meeting centres support programme highly appreciated by people with dementia and carers: a European cross-country evaluation

被引:13
|
作者
Szczesniak, Dorota [1 ]
Rymaszewska, Joanna [1 ]
Saibene, Francesca Lea [2 ]
Lion, Katarzyna Malgorzata [1 ]
D'arma, Alessia [2 ]
Brooker, Dawn [3 ]
Evans, Shirley B. [3 ]
Evans, Simon C. [3 ]
Chattat, Rabih [4 ]
Scorolli, Claudia [4 ]
Meiland, Franka [5 ]
Hendriks, Iris [6 ]
Droes, Rose-Marie [5 ]
Farina, Elisabetta [2 ]
机构
[1] Wroclaw Med Univ, Dept Psychiat, Pasteura 10, PL-50367 Wroclaw, Poland
[2] IRCCS Fdn Don Carlo Gnocchi, Milan, Italy
[3] Univ Worcester, Assoc Dementia Studies, Worcester, England
[4] Univ Bologna, Dept Psychol, Bologna, Italy
[5] Vrije Univ Amsterdam, Med Ctr, Amsterdam Univ Med Ctr, Dept Psychiat,Amsterdam Publ Hlth Res Inst, Amsterdam, Netherlands
[6] Vrije Univ Amsterdam, Med Ctr, Dept Psychiat, Amsterdam, Netherlands
关键词
Dementia carers; social support; day programs; qualitative study; HOME-DWELLING PERSONS; SUBJECTIVE EXPERIENCES; FAMILY CARERS; HEALTH-CARE; COMMUNITY; INTERVENTIONS; SATISFACTION; PERSPECTIVE; NEEDS;
D O I
10.1080/13607863.2019.1683814
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Background: The Meeting Centres Support Programme (MCSP) offers a combined approach to providing practical, emotional and social support to people living with mild to moderately severe dementia and their family carers in the community. Methods: A mixed methods explanatory design was used. The evaluation took place within the framework of the international Joint Programme - Neurodegenerative Disease Research (JPND) - MEETINGDEM study in nine Meeting Centres in Italy, Poland and the United Kingdom. Eighty-seven people with dementia and 81 family carers completed a user evaluation survey after three months and 83 people with dementia and 84 carers after 6 months of participation in MCSP. Thirty-two people with dementia and 30 carers took part in focus groups after nine months. Results: The percentage of people with dementia who were very satisfied with the programme increased significantly over time (p = 0.05). The majority of carers reported that they felt less burdened after three months of participation in MCSP (48.1% much less; 35.4% a little less). After six months, this percentage increased significantly to 91% (p = 0.04, 57.7% much less; 33.3% little less). Focus group analysis showed that people with dementia and carers in all countries/centres improved their ability to maintain emotional balance. Conclusions: The MCSP is highly appreciated by people with dementia and carers in all countries and it confirms the results of previous research into MCSP in the Netherlands. Our findings indicate that MCSP is a model that can help its users to increase their capacity to deal with the challenges caused by dementia and can promote emotional balance.
引用
收藏
页码:149 / 159
页数:11
相关论文
共 48 条
  • [1] The Meeting Centre Support Programme - an Amsterdam model of integrated support for people with dementia and their carers
    Urbanska, Katarzyna
    Szczesniak, Dorota
    Rymaszewska, Joanna
    Droes, Rose-Marie
    [J]. POSTEPY PSYCHIATRII I NEUROLOGII, 2016, 25 (01): : 42 - 48
  • [2] Costs and cost-effectiveness of the meeting centres support programme for people living with dementia and carers in Italy, Poland and the UK: The MEETINGDEM study
    Henderson, Catherine
    Rehill, Amritpal
    Brooker, Dawn
    Evans, Simon C.
    Evans, Shirley B.
    Bray, Jennifer
    Saibene, Francesca Lea
    Scorolli, Claudia
    Szczesniak, Dorota
    d'Arma, Alessia
    Lion, Katarzyna
    Atkinson, Teresa
    Farina, Elisabetta
    Rymaszewska, Joanna
    Chattat, Rabih
    Meiland, Franka
    Droes, Rose-Marie
    Knapp, Martin
    [J]. HEALTH & SOCIAL CARE IN THE COMMUNITY, 2021, 29 (06) : 1756 - 1768
  • [3] Effectiveness of a psychosocial intervention in dementia: The meeting centre support programme for people with dementia and their carers in Poland, Italy and the UK
    Rymaszewska, J.
    Szczesniak, D.
    Urbanska, K.
    Brooker, D.
    Evans, S.
    Evans, S.
    Bray, J.
    Chattat, R.
    Farina, E.
    d'Arma, A.
    Saibene, F.
    Hendriks, I.
    Meiland, F.
    Droes, R. M.
    [J]. EUROPEAN PSYCHIATRY, 2018, 48 : S255 - S255
  • [4] Facilitators and barriers in the implementation of the meeting centres model for people with dementia and their carers
    Meiland, FJM
    Dröes, RM
    de Lange, J
    Vernooij-Dassen, MJFJ
    [J]. HEALTH POLICY, 2005, 71 (02) : 243 - 253
  • [5] Effect of Meeting Centres Support Program on feelings of competence of family carers and delay of institutionalization of people with dementia
    Dröes, RM
    Breebaart, E
    Meiland, FJM
    van Tilburg, W
    Mellenbergh, GJ
    [J]. AGING & MENTAL HEALTH, 2004, 8 (03) : 201 - 211
  • [6] Use of technology by people with dementia and informal carers during COVID-19: A cross-country comparison
    Chirico, Ilaria
    Giebel, Clarissa
    Lion, Katarzyna
    Mackowiak, Maria
    Chattat, Rabih
    Cations, Monica
    Gabbay, Mark
    Moyle, Wendy
    Pappada, Alessandro
    Rymaszewska, Joanna
    Senczyszyn, Adrianna
    Szczesniak, Dorota
    Tetlow, Hilary
    Trypka, Elzbieta
    Valente, Marco
    Ottoboni, Giovanni
    [J]. INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 2022, 37 (09)
  • [7] The use of technology by people with dementia and informal carers during COVID-19: a cross-country comparison
    Chirico, Ilaria
    Giebel, Clarissa
    Lion, Katarzyna
    Mackowiak, Maria
    Cations, Monica
    Chattat, Rabih
    Gabbay, Mark
    Moyle, Wendy
    Pappada, Alessandro
    Rymaszewska, Joanna
    Senczyszyn, Adrianna
    Szczesniak, Dorota
    Tetlow, Hilary
    Trypka, Elzbieta
    Valente, Marco
    Ottoboni, Giovanni
    [J]. INTERNATIONAL PSYCHOGERIATRICS, 2021, 33 : 25 - 26
  • [8] Effect of the Meeting Centres Support Program on informal carers of people with dementia:: Results from a multi-centre study
    Dröes, RM
    Meiland, FJM
    Schmitz, MJ
    Van Tilburg, W
    [J]. AGING & MENTAL HEALTH, 2006, 10 (02) : 112 - 124
  • [9] Linking two new E-health caregiver interventions to meeting centres for people with dementia and their carers; a process evaluation
    van Rijn, Annelies
    Meiland, Franka
    Droes, Rose-Marie
    [J]. AGING & MENTAL HEALTH, 2020, 24 (08) : 1316 - 1325
  • [10] The impact of the implementation of the Dutch combined Meeting Centres Support Programme for family caregivers of people with dementia in Italy, Poland and UK
    Evans, Shirley
    Evans, Simon
    Brooker, Dawn
    Henderson, Cate
    Szczesniak, Dorota
    Atkinson, Teresa
    Bray, Jennifer
    Amritpal, Rehill
    Saibene, Francesca Lea
    d'Arma, Alessia
    Scorolli, Claudia
    Chattat, Rabih
    Farina, Elisabetta
    Urbanska, Katarzyna
    Rymaszewska, Joanna
    Meiland, Franka
    Droes, Rose-Marie
    [J]. AGING & MENTAL HEALTH, 2020, 24 (02) : 280 - 290