A call to action: Antiracist patient engagement in adolescent and young adult oncology research and advocacy

被引:13
|
作者
Cheung, Christabel K. [1 ]
Tucker-Seeley, Reginald [2 ]
Davies, Simon [3 ]
Gilman, Megan [4 ]
Miller, Kimberly A. [5 ]
Lopes, Gilberto [6 ]
Betz, Gail D. [7 ]
Katerere-Virima, Thuli [7 ]
Helbling, Laura E. [7 ]
Thomas, Bria N. [8 ]
Lewis, Mark A. [9 ]
机构
[1] Univ Maryland, Sch Social Work, 525 West Redwood St, Baltimore, MD 21201 USA
[2] Univ Southern Calif, Leonard Davis Sch Gerontol, Los Angeles, CA 90089 USA
[3] Teen Canc Amer, Los Angeles, CA 90064 USA
[4] Mem Sloan Kettering Canc Ctr, AYA Psychiat, New York, NY 10065 USA
[5] Univ Southern Calif, Keck Sch Med, USC Ctr Young Adult Canc Survivorship Res, Dept Prevent Med, Los Angeles, CA 90033 USA
[6] Univ Miami, Miller Sch Med, Sylvester Comprehens Canc Ctr, Miami, FL 33136 USA
[7] Univ Maryland, Hlth Sci & Human Serv Lib, Baltimore, MD 21201 USA
[8] Loyola Univ Maryland, Baltimore, MD 21210 USA
[9] Intermt Healthcare, Dept Gastrointestinal Oncol, Murray, UT 84107 USA
基金
美国国家卫生研究院;
关键词
adolescent and young adult oncology; antiracist; AYA; COVID-19; patient advocacy; patient engagement; PCORI; psychosocial; racial; ethnic minority; research methods; CANCER; FRAMEWORK; CHALLENGES; OPPORTUNITIES; OUTCOMES; LESSONS; RACE;
D O I
10.2217/fon-2020-1213
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Amidst the concurrent global crises of coronavirus disease 2019 (COVID-19), uprisings against Anti-Black racism and police brutality, as well as anti-Asian racism and violence, the field of medicine found itself simultaneously called upon to respond as essential workers in the public health devastation of COVID-19, and as representatives of healthcare institutions wrought with the impacts of systemic racism. Clinicians, researchers, and advocates in adolescent and young adult (AYA) oncology, must come together in authentic activism to begin the work of creating structural change to advance antiracist approaches to patient engagement in AYA oncology research and advocacy. Critical review of existing practices is needed to ensure that ethical and effective research methods are employed when engaging with racial and ethnic minority AYA patients with cancer, who may be particularly vulnerable and exploited in the current context.
引用
收藏
页码:3743 / 3756
页数:14
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